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  • Posted by a hidden member.
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    Aug 11, 2010 4:34 PM GMT
    N/A
  • shag91607

    Posts: 62

    Aug 11, 2010 7:44 PM GMT
    The testing is a pretty standard upper GI test usually with a blood test to check for anemia and other abnormalities. You'll have to drink a lovely barium smoothie, which, granted this was long ago, tastes like a chalky version of pepto-bismol. Then they'll do a series of xrays watching the barium pass through your intestines. It's not horribly unpleasant, just takes forever. They may do a colonoscopy if necessary.

    Depending of the severity of symptoms, if you're diagnosed, you'll either go on meds for symptom control and potentially have surgery if blockages form.

    A huge piece of advice: SPECIFICALLY ask your doctor for a Celiac Disease test (gluten intolerance) as the symptoms of celiac disease are frequently and often misdiagnosed as Crohn's. Treatments are much more effective, since you attack the cause, and not the symptoms if it turns out to be Celiac Disease. I was misdiagnosed as a teenager and it wasn't until my college days, when I did research on my own, and pushed another doctor to determine the root cause.
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    Sep 27, 2010 7:29 PM GMT
    For information on health related stuff, I always search mayoclinic.com

    http://www.mayoclinic.com/

    They go step by step from symptoms, to causes, risk factors, complications etc... I think it's a good starting point to find out about something.
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    Oct 25, 2010 9:19 PM GMT
    Hey there,
    What about ulcerative colitis? It is a similar disease (from within the same family as Crohns). I had it.

    What were your results?

    Dave
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    Oct 25, 2010 9:35 PM GMT
    Considering this is a fitness website, did you change protein powders recently? Some people are more sensitive to certain blends of protein type.
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    Oct 25, 2010 9:37 PM GMT
    Manage your stress an start seeing a GI specialist.
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    Oct 28, 2010 9:36 PM GMT
    You say "funky things are going on back there" what exactly does that mean? Colitis could be an issue maybe polyps, ulcers or cysts
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    Oct 28, 2010 9:45 PM GMT
    avoid alcohol and smoking, it can exacerbate crohns. ..
  • MuscleComeBac...

    Posts: 2376

    Oct 28, 2010 10:24 PM GMT

    I had a terrible time with UC earlier this year, and it took a short does of prednisone to get it to calm down. Once it did, I actually went off the meds they had me on for UC, and started a simple regimen of Nexium. Mine was exacerbated by three things: excess acid (result of both weight loss and more frequent meals); spice/high-acid content foods; stress.

    Now it's under control, but at one point it was so bad it mimicked all the referring pains of cardiac arrest, and that was NOT fun. Plus, if any part of your lower GI is irritated or inflamed it actually causes fatigue and muscle weakness, so you'll need to slow down and get it under control, then work your way slowly back to norm.

    There are no "typical" cases, in spite of what your GI doc will tell you. Listen to your body. Be willing to be an aggressive patient. Make them listen to you and how your body responds to treatment.

    It is manageable and it can be controlled if you're patient and do research into diet, nutrition, and stress reduction.

    There are some very informative and well researched threads over on bodybuilding.com if you search their forums for "chron's" and "colitis".
    This includes some very good breakdown of supplements that do and don't aggravate and irritate either or both.
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    Oct 28, 2010 10:41 PM GMT
    i got diagnosed with crohn's disease two years ago. i remember going to the bathroom for a #2 and then looking down and seeing blood. i wound up making an appointment for the doctor in several weeks, but then i started getting abdominal cramps and pain so they saw me the next day. after telling my doctor of everything going on, i was scheduled for a colonoscopy. haha i remember telling my buddies and they just laughed because i was getting a camera shoved up my ass.

    but anyway, the colonoscopy showed the pattern of inflamation in my intestine to be crohn's disease. i was put on prednisone, a steroid to induce remission, and asacol, a maintenance medication. i was fine until the asacol actually worsened my symptoms to the point where i physically could not eat anything without getting horrible cramps. i have a high tolerance for pain but this shit actually made me cry. i wound up losing about fifteen pounds in a matter of weeks, so just be aware it's possible to have reactions to these medications.

    anyway, i'm not on 6-mercaptopurine, an immunosuppressant and have been alright for a while. this year was hard because i was essentially bouncing back and forth in and out of a relapse. i think i'm finally okay now (first time since january).

    chances are if it runs in your family, it could very well be crohn's. i would just make sure it's crohn's and NOT ulcerative colitis as the two are oftentimes mixed up. ulcerative colitis is typically characterized by inflammation throughout the entire intestine, whereas crohn's is more of a blotchy pattern of inflammation interrupted by sections of healthy, uninflamed tissue.

    as for supplements, i learned that protein shakes high in gluatmine messed me up and actually took a part in inducing a relapse. there's no magical diet that will cure crohn's, but if you find things that bother you avoid them. for me it's msg, glutamine, and coffee. and try not to stress out about it. stress makes everything worse, and if you feeling normal stress can actually induce a relapse.
  • MuscleComeBac...

    Posts: 2376

    Oct 28, 2010 11:15 PM GMT
    my doc didn't believe me that Asacol was killing me, so I took myself off of it and got 100% better. It's fucking poison!
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    Oct 28, 2010 11:34 PM GMT
    MuscleComeBack saidmy doc didn't believe me that Asacol was killing me, so I took myself off of it and got 100% better. It's fucking poison!



    haha mine didn't either! she was like, "i think that was just your flare running it's course. you should try it again." so i (being an idiot and actually trusting my doc) tried asacol again. literally 6 hours after the first dose i was on the toilet and having cramps. so i stopped, called my doctor and said thanks but i'm switching doctors, and wasn't better for a week. after just one dose! WTF?

    they say only a small percentage of people have a bad reaction to it, but around 50% of the people i've talked to said it made everything worse. that stuff should be taken off the market in my opinion.
  • Intercoastal

    Posts: 54

    Oct 29, 2010 4:08 PM GMT
    welcome to the club man lol i was diagnosed 4 years ago and found out diet can controll alot of the problems first of all "gluten" wheat for the most part is going to be a headache go to a gluten free diet " made a huge differance!
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    Oct 31, 2010 2:32 PM GMT
    I would encourage you to consider using uncaria tomentosa (cat's claw). A liquid version, not a capsule. You may be very surprised with the results.
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    Oct 31, 2010 5:07 PM GMT
    Treejock1 saidwelcome to the club man lol i was diagnosed 4 years ago and found out diet can controll alot of the problems first of all "gluten" wheat for the most part is going to be a headache go to a gluten free diet " made a huge differance!


    I've already made vast changes to my diet and have seen *some* improvement. I'm taking it back to incorporating a lot of raw fruits and veggies and have cut out a lot of the crap I thought was exacerbating the problem.
  • abflexman

    Posts: 121

    Oct 31, 2010 10:14 PM GMT
    I got diagnosed about 5-6 years ago now, it took about 6 months to get a correct diagnosis. I first went to the doctors because of the extreme tiredness I was suffering from, this ended up being because I was suffering from Anemia, which was caused from the Crohns.

    Throughout the 5-6 years i have had a number of Colonoscopies, Sigmoidoscopies and Endoscopies, and i regularly have check ups. I have been on a number of different drugs, the best being Infliximab, which I was given through a drip once every 6 weeks - it worked a treat clearing up the fistula's I had, now i am on some drug called Methotrexate (or something like that)

    Diet wise for me its kind of what is bad for most people is good for me. So I stick to white bread instead of wholemeal, likewise with pasta . Steer clear of fruit and veg unless its skinless and has no bits. And steer clear of caffeine and alcohol. Now I have to say i am pretty rubbish at following this as i like all kinds of food, flippin love coffee and have a tendency to have one to many pints! So I tend to take each day as it comes with what i eat and drink, if i am having a bad day i will be good, thankfully i have had more good days latelyicon_biggrin.gif
  • LifeByTheHorn

    Posts: 255

    Nov 22, 2010 2:42 AM GMT
    I have colitis. I had tough time in the beginning of this year and got way better after treatment. I still have moments though! Two years ago, I did not have it and was perfectly healthy! After very stressful times, it developed itself and caught me off guard! Tough luck gotta deal with it, who knows how long !
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    Dec 24, 2010 6:21 PM GMT
    We work with client's with Crohn's Disease. If you do have that, you need to watch out for malnutrition, since the body doesn't assimilate nutrients as efficiently.

    On poor digestion: I had egg drop soup at a Chinese restaurant and had IBS for months. The doctor checked and there was nothing bacterial or parasitic - turns out what helped me was a drink called Ume Sho Kuzu (it's from Japan and is reputed to strengthen the intestines) and I'm fine now - thankfully!! You can find it in a book called Glow by Christina Pirello. The simple things I've learned from her have helped me over and over again. Now I work with a Registered Dietitian to help others to eat healthfully.

    For Crohn's - you really need to take the best care of yourself possible, from stress reduction by doing things like yoga - meditation, to getting enough sleep, to eating healthfully. It all matters and helps your body run as smoothly as possible under all conditions. High quality choices in self care have saved my ass repeatedly over the years. Give yourself the best care possible.

    Take care, Joe