heart problems

  • Posted by a hidden member.
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    Mar 24, 2011 5:23 AM GMT
    icon_sad.gifwell ive been having chest pains so I did the right thing and went to see my doctor my blood pressure was very high 180/110 he tracked this for 2months put me on meds nothing it didnt go down so then he wanted me to see a carioligest so I did it was going fine until the ultra sound they found my aortic thingy is paper thin from years of high blood pressure then he tells me that there is nothing he can do im going to die but they cant tell me when just to go home and get my affairs inorder now what do I do just wait I guess anyway I will keep you up to date I hope.
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    Mar 24, 2011 5:46 AM GMT
    That's is just terrible to be left like that. Can you not go elsewhere to get another opinion, you owe it to yourself.
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    Mar 24, 2011 2:17 PM GMT
    bullard saidicon_sad.gifwell ive been having chest pains so I did the right thing and went to see my doctor my blood pressure was very high 180/110 he tracked this for 2months put me on meds nothing it didnt go down so then he wanted me to see a carioligest so I did it was going fine until the ultra sound they found my aortic thingy is paper thin from years of high blood pressure then he tells me that there is nothing he can do im going to die but they cant tell me when just to go home and get my affairs inorder now what do I do just wait I guess anyway I will keep you up to date I hope.


    You should take your diagnosis seriously, educate yourself on what is going on with your heart, and use the standard terminology. If by "thingy" you mean "valve," then you may require an aortic valve replacement. If your chronic high blood pressure has led to decompensation of your heart, you may require a heart transplant. You should be on aggressive blood pressure control with a variety of medications. Telling patients that they are going to die and to get their papers in order is cliché and not the best way to notify patients of a terminal illness. Unless your cardiologist gave you more information (i.e., what is going on, why your prognosis is poor), you may want to consider seeing a different cardiologist. Your government has published a document regarding aortic valve replacement that shows approximately 2300 valve replacement procedures being done in 2006. The number of procedures has probably increased over time. You should also involve your primary physician in charting your course, as he presumably knows your medical history the best. Now is the time to look forward.
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    Mar 24, 2011 3:38 PM GMT
    Thats absolute bull-shit. Go see another Cardiologist. My grandfather has lived many years past what his original heart doctor told him. He has anything and everything you can imagine when it comes to having a bad heart. Only 6% of it works now and he is still kicking and enjoying life. You owe it to yourself to get a second and a third opinion.
  • Anto

    Posts: 2035

    Mar 24, 2011 4:00 PM GMT
    bullard saidicon_sad.gifwell ive been having chest pains so I did the right thing and went to see my doctor my blood pressure was very high 180/110 he tracked this for 2months put me on meds nothing it didnt go down so then he wanted me to see a carioligest so I did it was going fine until the ultra sound they found my aortic thingy is paper thin from years of high blood pressure then he tells me that there is nothing he can do im going to die but they cant tell me when just to go home and get my affairs inorder now what do I do just wait I guess anyway I will keep you up to date I hope.


    They can't reinforce the aorta?
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    Mar 24, 2011 5:13 PM GMT
    icon_sad.gifThanks for your advice yes it is my aoetic valve I was trying to keep it light sorry yes its from 25 years of high blood pressure the specalist says that I wouldnt make it through an opperation he doesnt want to put me through the stress of that for no reason its fine im 50 in 2months ive lived a full life I was angry to start with but ive accepted it now almost some days I get a bit why me I just needed to talk to someone
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    Mar 24, 2011 5:16 PM GMT
    bullard saidicon_sad.gifwell ive been having chest pains so I did the right thing and went to see my doctor my blood pressure was very high 180/110 he tracked this for 2months put me on meds nothing it didnt go down so then he wanted me to see a carioligest so I did it was going fine until the ultra sound they found my aortic thingy is paper thin from years of high blood pressure then he tells me that there is nothing he can do im going to die but they cant tell me when just to go home and get my affairs inorder now what do I do just wait I guess anyway I will keep you up to date I hope.


    You need to speak to another specialist. I believe that is a "disecting aorta". My mother has/had the same thing. She had surgery on it 12 years ago and had another form in a different area. She has opted not to have surgery again because it's in a risky location.

    Get another opinion.
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    Mar 24, 2011 6:34 PM GMT
    Definitely, get another opinion.
  • JHunter

    Posts: 41

    Mar 24, 2011 7:46 PM GMT
    Your not even 50 yet there is no reason to give up on life. I don't know why the cardiologist would have told you that. You may be high risk because of comorbidities but that does not mean that the surgery should not be done, especially someone your age. We do open heart surgery on 80 year olds for crying out loud and they live a long healthy life afterwards. You say that they told you the aortic "thingy" was paper-thin so Im guessing that they are talking about your aorta or aortic arch. This can be fixed with a graft in a similiar fashion that coronary arteries are bypassed, it's just a much larger graft. They are always risks and possible complications please keep that in mind. I can't believe at your young age they told you there was nothing you could do. Definitely, definitely, definitely go get another opinion.
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    Mar 24, 2011 7:47 PM GMT
    Get another opinion!
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    Mar 24, 2011 7:54 PM GMT
    You need to get a second and third opinion. And dont wait either.
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    Mar 24, 2011 9:55 PM GMT

    Two things:

    1) As others have suggested, please think about seeing at least a couple of more cardiologists - preferably at teaching hospitals and hopefully experts in the particular kind of aortic issue you seem to have.

    2) I can't imagine the anxiety this must be causing for you. I had a (by comparison) relatively minor cardiac health scare late last year and I felt like I was walking on eggshells for weeks.

    I wish you all the best. Please keep us updated.

    Peace.
  • Posted by a hidden member.
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    Mar 24, 2011 11:55 PM GMT
    msuNtx saidThats absolute bull-shit. Go see another Cardiologist.

    sdgman saidGet another opinion.

    60isthenew40 saidDefinitely, get another opinion.

    blackhawksfan saidGet another opinion!

    bikerideguy saidYou need to get a second and third opinion. And dont wait either.
    I'm jumping on the bandwagon with these guys...get a second opinion.
  • TrentGrad

    Posts: 1541

    Mar 25, 2011 12:02 AM GMT
    bullard saidicon_sad.gifwell ive been having chest pains so I did the right thing and went to see my doctor my blood pressure was very high 180/110 he tracked this for 2months put me on meds nothing it didnt go down so then he wanted me to see a carioligest so I did it was going fine until the ultra sound they found my aortic thingy is paper thin from years of high blood pressure then he tells me that there is nothing he can do im going to die but they cant tell me when just to go home and get my affairs inorder now what do I do just wait I guess anyway I will keep you up to date I hope.


    Wow...what a shitty way to break it to you.

    Yes, get a 2nd opinion...and if necessary, a 3rd opinion!

  • LJay

    Posts: 11612

    Mar 25, 2011 12:13 AM GMT
    TrentGrad, you sure seem to run awry in the health area. Is there any chance this is related to the numbness you have been feeling?
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    Mar 25, 2011 12:27 AM GMT
    I can't imagine a doctor / cardiologist telling you something like that.

    Get a second and third opinion from some good cardiologists!!
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    Mar 25, 2011 12:28 AM GMT
    bullard said...he tells me that there is nothing he can do im going to die but they cant tell me when just to go home and get my affairs in order...

    WHOA... WHOA.. WHOA... No, No, No, absolutely not.

    First of all, if it's that serious (after you have a second opinion promptly), you are young enough to be a heart replacement candidate.

    Second, I've been told twice in my life I was terminally ill, the first time when I was 32, with less than 2 years to live. I knew the doctor was wrong, as he proved to be, and I was surprisingly unruffled by the whole thing.

    The next time I was mid-40s, and I was told I likely had Lou Gehrig's Disease (ALS), an ugly way to die. Well, I'm tougher than tough, and for a few years I did have some moments, since the only real proof is when you develop specific & unmistakable symptoms, as there aren't good definitive tests they can run. So I just had to wait, sweat it out, and see.

    Well, here I am. If I had ALS I should have been dead by now. I just soldier on. Nothing scares me anymore.

    You get that second opinion, and at 49 you have options. Serious, no doubt, but not necessarily hopeless.

    You're gonna do what the guys here are telling you, right? Or else I swear, some RJ guys are gonna come over there and smack your ass, you got that? icon_wink.gif
  • Posted by a hidden member.
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    Mar 25, 2011 12:57 AM GMT
    bullard saidicon_sad.gif my aortic thingy is paper thin


    Are you talking about your aortic valve? That can be replaced with an artificial valve or a metal valve---

    You've got mail--
    Dean
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    Mar 25, 2011 1:17 AM GMT
    bullard saidicon_sad.gifThanks for your advice yes it is my aoetic valve I was trying to keep it light sorry yes its from 25 years of high blood pressure the specalist says that I wouldnt make it through an opperation he doesnt want to put me through the stress of that for no reason its fine im 50 in 2months ive lived a full life I was angry to start with but ive accepted it now almost some days I get a bit why me I just needed to talk to someone


    Do you have other health problems in addition to the chronic high blood pressure (e.g., diabetes, lung disease, kidney disease, bleeding disorder) that make you a high-risk surgical candidate? This may be a reason why your cardiologist dissuaded you from undergoing the surgical option. However, your treatment course depends on your outlook. If you have resigned yourself to a death sentence, then you will not have the motivation to seek out another cardiologist or a cardiovascular surgeon that is willing to take the risks with you. Of course the choice is ultimately yours, but it should be based more on your desire to continue living than the recommendations of a single cardiologist.
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    Mar 25, 2011 5:03 AM GMT
    icon_biggrin.gifThank you all so very much ive been sitting here today reading all your thourghts ive booked a flight to my doctor on the goldcoast if anyone will know what to do it will be him im not sure how this will end but once again thankyou all very very much for caring about some silly old fart its nice to know there are still some very nice peaple left in the world keep you informed all the best from andrew.
  • chgobuzz1

    Posts: 155

    Mar 25, 2011 5:25 AM GMT
    Be sure to load up on an anti-oxidant called Co Enzyme Q10 in the largest dosage they have at your local Chemist or drug store or health food vitamin store. It rebuilds heart cells and most of us are deficient in it. Hopefully you dont smoke and do quit if you do. Here in Chicago they do robotic heart surgeries now to slip new valves up to the heart through veins instead of open heart. Or they go through the side under the ribs with small robotic tools for various heart surgeries. I believe Elizabeth Taylor had one a couple years ago but her heart was just worn out after 79 years. I take 3 Q10 tablets at lunch and 3 more after dinner every day. 200 milligram size.
    No way that can hurt any body. ANother helpful thing is Omega3's. But if you are on blood thinners then check with your doctor first. Ultimately it is up to you to know if this is the right time to move on or decide to stay longer. Release all thoughts of being a victim and the results will amaze you. All Best
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    Mar 25, 2011 1:18 PM GMT
    bullard saidicon_biggrin.gifThank you all so very much ive been sitting here today reading all your thourghts ive booked a flight to my doctor on the goldcoast if anyone will know what to do it will be him im not sure how this will end but once again thankyou all very very much for caring about some silly old fart its nice to know there are still some very nice peaple left in the world keep you informed all the best from andrew.


    Good! I read a story back a few years ago about a guy who had rare and incurable form of cancer. He got second, third and fourth opinions from the best doctors in the US, and they all said it was terminal. Some gave him 3 months, others a year.

    Finally, after much looking, he found a research hospital with an experimental drug or method (I forget which) to treat his rare form of cancer. Anyway, he brought the info back to his Oncologist, and they ended getting him into the trials. It turned out to work for him...and he's been living several years cancer free.

    Everybody said he was lucky. But he made his own luck by not giving up. If he had given up, people would have said...poor old Jack, how unlucky.

    This story was from a book called, The Survivor's Club. Great read, I highly recommend getting it. Turns out this guy studied sharks for a living...he says they keep moving and never give up. They're survivors. You are too.
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    Mar 25, 2011 1:26 PM GMT
    Art_Deco said
    bullard said...he tells me that there is nothing he can do im going to die but they cant tell me when just to go home and get my affairs in order...

    WHOA... WHOA.. WHOA... No, No, No, absolutely not.

    First of all, if it's that serious (after you have a second opinion promptly), you are young enough to be a heart replacement candidate.

    Second, I've been told twice in my life I was terminally ill, the first time when I was 32, with less than 2 years to live. I knew the doctor was wrong, as he proved to be, and I was surprisingly unruffled by the whole thing.

    The next time I was mid-40s, and I was told I likely had Lou Gehrig's Disease (ALS), an ugly way to die. Well, I'm tougher than tough, and for a few years I did have some moments, since the only real proof is when you develop specific & unmistakable symptoms, as there aren't good definitive tests they can run. So I just had to wait, sweat it out, and see.

    Well, here I am. If I had ALS I should have been dead by now. I just soldier on. Nothing scares me anymore.

    You get that second opinion, and at 49 you have options. Serious, no doubt, but not necessarily hopeless.

    You're gonna do what the guys here are telling you, right? Or else I swear, some RJ guys are gonna come over there and smack your ass, you got that? icon_wink.gif


    guess i'm probably closest, distance wise, so does that role fall to me? p

    bullard, seriously, where did you get this diagnosis? please tell me it wasn't from one of the country docs... they have no idea, let's face it, they're there for the money largely, or because they have to be, cause they get farmed out to places there are doctors shortages... you desperately need to get to sydney and get a second opinion, by one of the specialists at the victor chang cardiac institute... let's face it, given the news you've been given, you don't really have a lot to lose... just do it!
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    Mar 26, 2011 3:38 PM GMT
    bullard saidicon_biggrin.gifThank you all so very much ive been sitting here today reading all your thourghts ive booked a flight to my doctor on the goldcoast if anyone will know what to do it will be him im not sure how this will end but once again thankyou all very very much for caring about some silly old fart its nice to know there are still some very nice peaple left in the world keep you informed all the best from andrew.



    You're going back to your same doctor? Huh?

    I'm hoping this doctor is the one that gave you a referral to that specialist and that you are going to demand a different specialist. 76coopers gave you a great tip: Sydney.

    -Doug

    PS Mom at 76 years old, had bicuspid vale replacement AND tricuspid (aortic valve) repair AND the scouring out of her heart's chambers AND the removal of an appendage on the heart that was trying to store blood. Her lungs were turning fibrous, her blood pressure was all over the map and her oxygen level at one point was at 81. lol, they wouldn't let her leave the hospital when I took her in for a random oxygen level test (she's complained of being short of breath), which was how the whole mess was uncovered. We just celebrated her 78th birthday last month.

    I got three specialists involved.

  • MikePhilPerez

    Posts: 4357

    Mar 26, 2011 7:02 PM GMT
    Something is not right here icon_confused.gif