Celiac?

  • Posted by a hidden member.
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    Jun 16, 2011 4:16 AM GMT
    Anyone around these parts have celiac disease? Any words of encouragement?

    I figure there's gotta be a fair number of guys on here who are celiac... would be interested to hear your experience leading up to your diagnosis and how you manage it today.

    Thanks icon_smile.gif
  • NerdLifter

    Posts: 1509

    Jun 16, 2011 5:05 AM GMT
    I do not personally have Celiac disease; however, I know people who do. It's a completely manageable disease that adds just a small extra degree logistics when you eat.

    It used to be that restaurant and supermarket managers/employees most likely have never heard of Celiac nor even gluten for that matter (which is appalling). However now the knowledge is much more commonplace as the population's awareness of the disease has significantly increased.

    Nevertheless, just stay on top of what is being served in your dish, and you'll be fine. Also, you can make some very delicious gluten free cakes.
  • Posted by a hidden member.
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    Jun 16, 2011 5:11 AM GMT
    Have you been formally tested for celiac? There are many people with strong sensitivities to wheat, (not necessarily gluten) .. but will not necessarily test positive for an allergy to celiac sprue. I know a lot about it, and have gone gluten-free for years.

    Let me know how you got diagnosed, or have you just tried going without gluten and felt a difference?

    It's easy peasy to go gluten-free. Just a change of old habits! Let me know, and we can discuss more!
  • MikemikeMike

    Posts: 6932

    Jun 16, 2011 5:34 AM GMT
    I had a friend who thought he had celiac but when tested it was Crohns disease. He read the book Patient Heal Thyself. It helped him greatly.

    Good Luck

    If it is Celiac Sprue Google it. There is tons of info on this on the web.

    I never had either but have friends with both. Celiac is alot easier to manage.

  • Jun 16, 2011 5:50 AM GMT
    I was diagnosed with Celiac Sprue Disease over a decade ago. I was hopsitalized for mysterious severe wight loss and severe gastric problems. A colonoscopy was performed; biopsy taken; results confirmed a diagnosis of Celiac Sprue (non-tropical version: tropical version is oinly temporary, usually picked up from traveling to tropical areas) and Asperigillus Niger. Back when I was diagnosed, Celiac was not a common disease, so, unlike today, there was not a proliferation of gluten free products readily availbale in local supermarkets. However, as time progressed, more such products showed up on the market. It is a manageable disease but, requires one to be well educated in what foods contain gluten (i.e. gluten can be found in products that don't specifically state "wheat" i.e. those with gluten intolerance cannot deal with rye, either - also, many salad dressings contain wheat byproduct. Also, avoid MSG (anything with the ingredient with Glutamate in it, is a gluten containing product). If eating out, try asking for Gluten Free Menu, most places carry them now. Also, many places, like iHop and the likes, use wheat in their omelettes.
  • CincyBOJ

    Posts: 306

    Jun 16, 2011 7:22 AM GMT
    StevenAngelBoy saidI was diagnosed with Celiac Sprue Disease over a decade ago. I was hopsitalized for mysterious severe wight loss and severe gastric problems. A colonoscopy was performed; biopsy taken; results confirmed a diagnosis of Celiac Sprue (non-tropical version: tropical version is oinly temporary, usually picked up from traveling to tropical areas) and Asperigillus Niger. Back when I was diagnosed, Celiac was not a common disease, so, unlike today, there was not a proliferation of gluten free products readily availbale in local supermarkets. However, as time progressed, more such products showed up on the market. It is a manageable disease but, requires one to be well educated in what foods contain gluten (i.e. gluten can be found in products that don't specifically state "wheat" i.e. those with gluten intolerance cannot deal with rye, either - also, many salad dressings contain wheat byproduct. Also, avoid MSG (anything with the ingredient with Glutamate in it, is a gluten containing product). If eating out, try asking for Gluten Free Menu, most places carry them now. Also, many places, like iHop and the likes, use wheat in their omelettes.


    Grats on your first post Hubby!!

    With three children in the house, and our oldest a vegetarian, it really makes cooking meals a challenge sometimes, Three diets. For example, spaghetti night, I make two types of noodles, tomato sauce, and seasoned meat in a little tomato paste. Then everyone can assemble their own dish.

  • Jun 16, 2011 7:30 AM GMT
    CincyBOJ said
    StevenAngelBoy saidI was diagnosed with Celiac Sprue Disease over a decade ago. I was hopsitalized for mysterious severe wight loss and severe gastric problems. A colonoscopy was performed; biopsy taken; results confirmed a diagnosis of Celiac Sprue (non-tropical version: tropical version is oinly temporary, usually picked up from traveling to tropical areas) and Asperigillus Niger. Back when I was diagnosed, Celiac was not a common disease, so, unlike today, there was not a proliferation of gluten free products readily availbale in local supermarkets. However, as time progressed, more such products showed up on the market. It is a manageable disease but, requires one to be well educated in what foods contain gluten (i.e. gluten can be found in products that don't specifically state "wheat" i.e. those with gluten intolerance cannot deal with rye, either - also, many salad dressings contain wheat byproduct. Also, avoid MSG (anything with the ingredient with Glutamate in it, is a gluten containing product). If eating out, try asking for Gluten Free Menu, most places carry them now. Also, many places, like iHop and the likes, use wheat in their omelettes.


    Grats on your first post Hubby!!

    With three children in the house, and our oldest a vegetarian, it really makes cooking meals a challenge sometimes, Three diets. For example, spaghetti night, I make two types of noodles, tomato sauce, and seasoned meat in a little tomato paste. Then everyone can assemble their own dish.


    Thanks, Hubby!
    SAB