Anyone have psoriasis?

  • Posted by a hidden member.
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    Sep 13, 2011 11:56 PM GMT
    Where is it on your body?
    What are your symptoms?
    What medication do you take, if any?
    Is there a cure?
  • bfirbs

    Posts: 53

    Sep 14, 2011 12:19 AM GMT
    Can appear anywhere on the body, but is common behind the ears, joints like the fingers and sometimes palms. But those are just common areas.

    Usually appears as open sores and dry scabby skin.

    Cortisone creams are common cures, but also sunlight is good for it. Just don't over do it. probably 10-15 mins a week at a tanning bed will help
  • citypartyboy

    Posts: 187

    Sep 14, 2011 12:20 AM GMT
    I was watching 'Keeping Up With The Kardashians". Kim has it on her legs and there is no cure. There is a lot of creams though apparently that can help reduce symptoms and make it non-apparent. Good luck!
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    Sep 14, 2011 12:34 AM GMT
    I get bouts of gutate psoriasis. I am just finishing my second attack. Its pretty much gone for now. Until the next strep throat.
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    Sep 14, 2011 2:36 AM GMT
    I can't say that I've seen psoriasis appear as open sores... as I have it icon_razz.gif

    I have it on my elbows and knees. And they can be itchy but not really. For the most part I don't even notice it. My doctor prescribed Desoximetasone USP, 0.25% and... it pretty much eliminated the problem, even when I don't use the stuff... it's a bit on the greasy side (the cream that is) but it works wonders.
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    Sep 14, 2011 3:14 AM GMT
    I mostly get it behind my ears, but have gotten sporadic itchy bumps (that look a lot like medium-size zits without white heads) on my abdomen as well as scales on my scalp. For the abdomen bumps and the red irritation behind my ears I've used doctor-prescribed Protopic and Taclonex ointments and have had decent results. I've only ever had it somewhat badly on my scalp (lots of scales, flaking and redness), which was surprisingly eliminated by Selsun Blue shampoo (the original formula). That was about two years ago, I've been using Selsun nearly every day, and it hasn't returned. Everything else seems to come back in cycles; usually I have some type of small itchy patch or a few bumps once every two months, lasting anywhere between 4 and 10 days. But the timeframes vary. Some months I don’t have a day without some type of irritation, but I’ve gone months without having any type of flare up.

    In my experience, the main enemies of psoriasis are abrasion, cold/dry weather and stress.

    Let me know if you have any questions; I know it can be a really stressful and depressing condition that no one likes talking about. Just remember that it's something that is largely manageable. But, yeah, no cure. It's an auto-immune disorder, not one of the skin.
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    Sep 14, 2011 3:26 AM GMT
    I get it on my back, chest, knees, feet, and face -

    my Dermatologist has me taking Soriatane ( Also i try to be on out on the sun a couple of times. the UV light kinda helps.

    There is also other stuff you can do:
    Over the Counter stuff:
    Shampoos like Dermarest or that contain coal tar (like Neutragina T3)
    Creams from dermarest as welll for psoriasis

    Doctor stuff
    ofcourse Soriatane for body
    and i am also on other body creams that have HELP A WHOLE LOT!!!!
    there is also controlled UV therapy

    my best advice is ...go to a dermatologist.. to make sure its psoriasis and not rosecia or a skin fungus.
  • TrentGrad

    Posts: 1541

    Sep 14, 2011 3:47 AM GMT
    NakedBudd saidWhere is it on your body?
    What are your symptoms?
    What medication do you take, if any?
    Is there a cure?

    Psoriasis, no...but I do have flare ups of eczema, usually on my hands, although I've had it flare up on my neck, on my legs, and some areas you really don't want to hear about.

    The typical eczema looks a lot like very dry, irritated, cracked skin...but sometimes for me, the skin blisters up...and the blisters remain present for a couple of a couple of weeks.

    My Father's wife has a family member who has psoriasis...and she says there is a creme called "Udderly Smooth" that he says works better than anything he's ever used before. Yes, the product was originally developed for cows' udders...when they got dry and chapped: however apparently there's lanolin or something in it that the psoriasis responds to.

    For my part, with my eczema, I find "buro-sol" (a powder that you dissove in water, then make dressings from and place over the effected area) works to help control flare does vaseline petroleum jelly and soft moisturizing soaps like Dove and yes, even the bar forms of "Oil of Olay" that are unscented and dye free.

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    Sep 14, 2011 4:29 AM GMT
    I have medium to mild plaque on my hands and shins. The stuff on my hands sometimes acts more like eczema. The stuff on my shins has the typical silvery plaque and red edges.

    Whenever I go very low carb and cut out all the corn and wheat products, it tends to go into remission except for some occasional itching. When it gets bad I use prescription steroids and that helps keep it in control.
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    Sep 14, 2011 5:11 AM GMT
    I got it on my face, specifically on my chin, around my nose and in my eye brows.

    I use over the counter cream which helps when it flares up otherwise I just look after my face I don't exfoliate it just makes it worse but I do rub my face on a scratchy towel which gets all the gross dead skin off after a shower heh.

    Shaving irritates in, as do a lot of normal face washes and moisturisers, I use stuff for sensitive skin, a long beard also sends mine mad too so I use clippers to keep it short.
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    Sep 14, 2011 10:05 PM GMT
    At the top of my left forearm, on the other side of the elbow, I get it pretty bad sometimes. The cream usually clears it up.
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    Sep 16, 2011 3:58 AM GMT
    I have ezcema that is related to stress. It appears mainly on the back of my scalp, waist, ankles. I take cortisone prescriptions but I also find that occasionally rubbing the clear antibacterial lotion stuff sometimes makes it itch less and go away. Maybe try that too. Ezcema is very close to psoriasis I think.
  • activeboy90

    Posts: 108

    Sep 16, 2011 4:05 AM GMT
    i used to have something that looked like it on my scalp, not horrible but def not dandruff, and i have a horrible habit of scratching my scalp which makes it not heal. sometimes it rears its ugly head (lol) but i usually know what to use to not have it
  • Neurons

    Posts: 537

    Sep 16, 2011 4:30 AM GMT
    My friend has it extremely bad. He has them randomly over his arms and his legs, forehead and scalp. The scalp and head don't look as bad but his has random patches on his arms and they bleed at random. He's had it for years..

    He recently was put on pills for it and they were working and it was disappearing but he had a toxic reaction to the pills and was sick for a month. Now he's back on creams for it. icon_sad.gif
  • Springer70

    Posts: 65

    Sep 16, 2011 4:45 AM GMT
    Yup. Have it. And, I've had it since I was a kid. Over the years, it's pretty much been everywhere (scalp, elbows, knees, hands, feet, ears, fingernails, ... ). Not always everywhere at once, but depending on the part, it comes and goes.

    Stress makes it worse. And, I've noticed a few things that make it better.

    Years ago I tried a treatment of methotrexate, which in high doses is a treatment for leukemia. The low-dose treatment for psoriasis is a medication that targets ANY cell in the body, and slows down cell reproduction. It's a treatment for medium to severe cases only. Blood analysis was also done every two weeks, so it's not a treatment for everyone.

    There a number of creams and topical treatments, and personally I've found it best to rotate through them, as they tend to stop being effective after a while. Right now, I'm using a cream called Dovobet, and it's pretty good.

    Light treatments work. But don't run out to your local tanning bed. There are specific light frequences (found in natural light, and special light beds) that work. So, if you're lucky to be in a southern area with lots of light, 15 to 20 minutes per day really does work. I tried the Dr supervised tanning beds last winter, and they do work. A single treatement only lasts a few minutes (or less, as my first time in the bed was only 15 seconds. .. Yes, the lights are THAT strong).

    There is no cure. Yet.

    Also. Don't scratch or pick at it. That's what most of those creams do, is supress the itchiness. While the CAUSE is still under debate (however, most now believe it's related to the immune system), the mechanics of psoriasis are pretty clear. It's simply an over-production of skin cells. Compared to normal skin, the areas affected can reproduce cells 10 to 20 time faster. So, when you scratch or pick at it you are wounding yourself, and your immune system jumps into action (extreme over-reaction) and tries to repair the damage. So, scratching it just makes it worse.
  • Applesauce

    Posts: 3

    Sep 21, 2011 8:51 AM GMT
    I have it but it's minimal. It appears about every 4-6 months (sometimes It goes a whole year without showing). Behing my ears and forehead are the only areas. I had it once in my elbow but never returned.
    I use a cream aswell.
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    Sep 21, 2011 6:58 PM GMT
    try Nizerol (sp?) shampoo.... just once or twice a month, its an anti-fungal, and clears a multitute of skin ailments....
  • HeyEddo

    Posts: 39

    Jul 28, 2012 6:47 AM GMT
    I know this post is old but I was browsing info thru google and I end up right here... and since Im bored and I got nothing to do I might as well put something on here.

    1. Where is on my body?
    Pretty much everywhere. I have guttate psoriasis and it covers 80% of my body. I never had much difficulty dealing with it til few months ago. I got psoriasis for the first time 7 years ago while I was living in the US. At that time I had a severe break out so I started right away with a chemotherapy drug commonly known as a Methrotrexate. At the same time I tried different alternative treatments, diets, etc... it took my skin few months to clear completely. By the time I got back to my home country after the winter and school my skin was fine and all cleared up. I didn't have any problem with it til I moved to the town where Im currently living. Strange cuz usually doctors and people say that sea water and good weather helps.

    Whereas, by mid 2010 out of nowhere my skin got back to the same nightmare where i was few years ago and my dermatologist started the chemo regimen I had when I was in the US: MTX and topical creams called Daivobet. It took only 3 months for the most of my skin to clear out but in some parts of my body like elbows or knees still remained... hence, my dermatologist decided that i should go on the same dosis of MTX, for about a year. Still, my skin was almost clear but not away from psoriasis yet...

    For my surprise, due a very irresponsible actions from me (I still blame my Dermatologist for not warning me) such as drinking, stress and bad diet the chemotherapy ended up affecting me and destroying almost my immune system.

    This lead to a long chain of unfortunate events and diseases. And of course i had to take off the MTX as an option and my psoriasis came back worst as when I got it the first time. I was not able to take any kind of med or drug for any of the other diseases I got, such as flu, viruses, bacterias, allergies, etc.

    By fall 2011 I had to start with immune system booster and a disgusting diet just to the get my Cells back on track, that was the good thing, the bad thing? my skin was getting worst.

    By this time i was horrify cuz I live in a beach town and I work in a resort, in the beach, under the sun! I was so ashamed that I didnt even try to take my shirt off.

    2. What are the symptoms? red skin lesions, mostly on my legs, feet, and elbows. But also in my scalp, ears, eyes, nose, face, arms, fingers, hands, nails, back, torso, buttcheeks and legs. It seems that when i go to the beach it helps a lot.

    3. What medication am i currently taking? Since im not allowed to take any immunosuppressant my list of options are not that short. However Betamethasone seems to work just fine. I have been using it for too long now tho and I can almost feel that aint working either, cuz everytime I forget to use it or i suspend the use for few days it comes back even worst. My new Dermatologist warned me about it. I also use Neutrogena TGEL as a body soap. Swim in the ocean and some sun.

    Its been on and off but mostly ON for the past 8 months without a single day with clear skin. Im still hoping my doctors will allow me to take humira or to do something else, but Im still waiting for diagnostics.

    Meanwhile I think I got over my level of self counscious, in the beggining I was very ashamed and worry for what people would say or for strange looks at the beach but I think im surrounded by cool people an it seems no body cares so why should I?

    My boyfriend whom I met 4 months ago has been very supportive and in some way I think that have helped me... people at work its just like "whatever" cuz sometimes it goes away and sometimes comes back but i think they got used to it. Most of the times I perform shows at night and no one really can see it.

    i THINK is mostly in my head. ( and in my legs)

    4. Is there a cure? National Psoriasis Foundation says they are working on it. I hope that day to come soon.

  • Posted by a hidden member.
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    Jul 28, 2012 7:11 AM GMT
    It's a glitch in the immune system, so as of yet there's no cure.

  • Jasonblue

    Posts: 288

    Jul 28, 2012 7:29 AM GMT
    No but I get eczema on my ankles. Never anywhere else thankfully.
  • trl_

    Posts: 994

    Jul 28, 2012 7:48 AM GMT
    its on my face around my nose and on my cheek bones.

    there's no cure as far as i know. at first i didn't know what it was so i used lotion because it makes those scales of dry skin (sorry, graphic lol) but that didn't work. after i would put apple cider vinegar on it and that sort of helped.

    i found this stuff called Psoriasin and it's awesome. as long as i use it like every other day or every third day my scales go away and the redness is gone. it smells really bad though and is made of coal tar so don't use it if you have funky allergies i guess. i used to have psoriasis on my scalp too but i use head and shoulders (which is also coal based) and that made it disappear completely , no idea how or why.
  • masculumpedes

    Posts: 5549

    Jul 28, 2012 8:15 AM GMT
    Never had it - but I have a friend who does and he says it makes him "undateable"....icon_eek.gif
  • d694485

    Posts: 222

    Jul 28, 2012 2:25 PM GMT

    Love this website.
  • Posted by a hidden member.
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    Jul 29, 2012 1:45 AM GMT
    Swimming in a chlorinated pool will help dry it out more quickly. My Mother and Aunt had it years ago. Hasn't returned since.