I know this post is old but I was browsing info thru google and I end up right here... and since Im bored and I got nothing to do I might as well put something on here.
1. Where is on my body?
Pretty much everywhere. I have guttate psoriasis and it covers 80% of my body. I never had much difficulty dealing with it til few months ago. I got psoriasis for the first time 7 years ago while I was living in the US. At that time I had a severe break out so I started right away with a chemotherapy drug commonly known as a Methrotrexate. At the same time I tried different alternative treatments, diets, etc... it took my skin few months to clear completely. By the time I got back to my home country after the winter and school my skin was fine and all cleared up. I didn't have any problem with it til I moved to the town where Im currently living. Strange cuz usually doctors and people say that sea water and good weather helps.
Whereas, by mid 2010 out of nowhere my skin got back to the same nightmare where i was few years ago and my dermatologist started the chemo regimen I had when I was in the US: MTX and topical creams called Daivobet. It took only 3 months for the most of my skin to clear out but in some parts of my body like elbows or knees still remained... hence, my dermatologist decided that i should go on the same dosis of MTX, for about a year. Still, my skin was almost clear but not away from psoriasis yet...
For my surprise, due a very irresponsible actions from me (I still blame my Dermatologist for not warning me) such as drinking, stress and bad diet the chemotherapy ended up affecting me and destroying almost my immune system.
This lead to a long chain of unfortunate events and diseases. And of course i had to take off the MTX as an option and my psoriasis came back worst as when I got it the first time. I was not able to take any kind of med or drug for any of the other diseases I got, such as flu, viruses, bacterias, allergies, etc.
By fall 2011 I had to start with immune system booster and a disgusting diet just to the get my Cells back on track, that was the good thing, the bad thing? my skin was getting worst.
By this time i was horrify cuz I live in a beach town and I work in a resort, in the beach, under the sun! I was so ashamed that I didnt even try to take my shirt off.
2. What are the symptoms? red skin lesions, mostly on my legs, feet, and elbows. But also in my scalp, ears, eyes, nose, face, arms, fingers, hands, nails, back, torso, buttcheeks and legs. It seems that when i go to the beach it helps a lot.
3. What medication am i currently taking? Since im not allowed to take any immunosuppressant my list of options are not that short. However Betamethasone seems to work just fine. I have been using it for too long now tho and I can almost feel that aint working either, cuz everytime I forget to use it or i suspend the use for few days it comes back even worst. My new Dermatologist warned me about it. I also use Neutrogena TGEL as a body soap. Swim in the ocean and some sun.
Its been on and off but mostly ON for the past 8 months without a single day with clear skin. Im still hoping my doctors will allow me to take humira or to do something else, but Im still waiting for diagnostics.
Meanwhile I think I got over my level of self counscious, in the beggining I was very ashamed and worry for what people would say or for strange looks at the beach but I think im surrounded by cool people an it seems no body cares so why should I?
My boyfriend whom I met 4 months ago has been very supportive and in some way I think that have helped me... people at work its just like "whatever" cuz sometimes it goes away and sometimes comes back but i think they got used to it. Most of the times I perform shows at night and no one really can see it.
i THINK is mostly in my head. ( and in my legs)
4. Is there a cure? National Psoriasis Foundation says they are working on it. I hope that day to come soon.