Does anyone have IBS, or digestive disorders - tips to help this community out

  • Posted by a hidden member.
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    Nov 01, 2011 3:41 PM GMT
    Does anyone have IBS or IBD and how do they deal with these chronic conditions

    28 yearsold - been diagnosed two years ago with IBS, and it is kicking my ass... lots of nausea, abdo pain all the time and just general feeling of malaise.

    Anyone have gone through similar issues? Would be great to set up a message thread to discuss techniques, modalities, medicines, nutritional assistance to make this condition workeable.

    To date have found peppermint tea, ginger capsules and getting lots of rest assists with symptoms.

    Any body else?
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    Nov 01, 2011 4:12 PM GMT
    Actually it seems that it plagues many gay men for some reason or another... I have had it for a few years, and I can commiserate - it ain't fun

    Have you tried Chamomille tea?
    There are also some intestinal repair kits by Metagenics and Bio-genesis which repair the intestinal wall, and include L-Glutamine, Slippery Elm and a whole bunch of other soothing and healing natural agents.

    If you are cramping you may want to try Librax, Bentyl or Modulon - there are a few others but they all work in a similar capacity of being anti-spasmodics

    You may want to try modifications in your diet. If you have never been scoped to determine celiac disease, you may still want to cut out gluten (including Soy sauce) as sensitivity to gluten and gliadins might put your gut out of wack or even exascerbate your condition. SOme say you can still eat oats - just make sure they are from a gluten-free facility

    Dairy is another tricky one... you may want to see how you feel taking dairy...

    Anybody else wanna share?
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    Nov 01, 2011 4:25 PM GMT
    Did you take Accutane as a teenager? THey are linking IBS to that these days.

    I took accutane and I feel like my IBS is from being on that as a teen. Mine comes and goes. Good days and then really bad days. Made marathon running absolutely horrible sometimes.

    I have pretty much over time figured out what foods triggers it to worse and stay away from it. It makes for boring food sometimes but I would rather not be on the pot all day.

    What is your fiber intake like? I found increasing mine though flax meal, rolled oats, raw veggies, etc really helped me the most.
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    Nov 01, 2011 4:28 PM GMT
    First thing to do is to make sure that you have no vitamin d deficiency. And, 1/3 of people do. After I upped my vit d and increased fiber intake (wild rice, sweet potato etc) my pains subsided and I'm pretty mch symptom free.
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    Nov 01, 2011 4:35 PM GMT
    About two years ago I was told I have crohn's disease. Its a nasty disease that can cause a number of problems including an average life expectancy of about 45 years. I have a number of digestive issues including food absorbsion. It can cause weight probles both gaining and losing. My body weight has fluxuated from 165-200 and now down to about 180. There are a large number of problems involved with it. I watch my dairy intake along with beer and others. I drink a lot of water and green tea which seem to help. There are meds that can kind of help but for the most part there is no cure. The only thing I can do is find ways to help with the pain.
  • Kwokpot

    Posts: 329

    Nov 01, 2011 5:07 PM GMT
    I have IBS and currently take Lomotil which slows down the intestines so I have less frequent BM'S. I take 1 in the morning and 1 in the evening, sometimes another 1 mid morning if I'm having a bad day.

    I have not been able to find a food trigger; dairy, gluten, coffee, OJ - I've tried eating and not eating without definitive results.

    I do find mornings after breakfast are the worst, but sometimes I'm fine.

    Some IBS sufferers yoyo between diarrihea and constipation; I just have the diarrehea/loose stools problem.

    I like using the moist toilet wipes so I feel nice & clean.

    Lately I feel that it's partially psychosomatic; I have more issues when I home (I'm retired)
    but when I'm vacationing, touring & know I don't have ready access to a toilet, I seem to have less issues.

    But yes, it can be a drain; sometimes I can have 4 BM's after breakfast and before noon. It definately puts you in a bad mood for sure.
  • inuman

    Posts: 733

    Nov 01, 2011 5:19 PM GMT
    My partner has IBS and after 2 years of figuring out a proper diet that works for him and also taking Metamucil once a day also helps, its what our family doctor suggested and it does help a lot. Stay away from high acid foods and oddly enough chocolate isn't the best to eat as well. That's all I got, my suggestion is to speak to your family doctor and ask what you can do to manage it.

    Best of luck guys its not a fun thing to have this I know just from being with a man who has it.
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    Nov 01, 2011 5:31 PM GMT
    I have ulcerative colitis, a form of IBD, which is a different from IBS, but a grain-free diet is sometimes recommended for both. I chose a paleo diet, which claims as well that beans and dairy should also be avoided for proper bowel health. For people with chronic problems, paleo says to experiment as well with avoiding seeds, nuts, eggs, and nightshades (potato, eggplant, tomato, all kinds of bell and hot peppers). Here are a few links that I found on the first try regarding IBS.

    http://www.marksdailyapple.com/grain-pain/
    http://www.ibsspace.com/group/paleodiet

    Have been on Paleo for 5 months and have had improvement in symptoms of colitis. Much better digestion in general. Food is absorbing much better, far less bowel discomfort, less bleeding, and I have lost excess body fat without losing muscle. It has saved me from having to go on prednisone; I can stay with safer meds.

    I posted twice about Paleo diet here http://www.realjock.com/gayforums/1908761/
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    Nov 01, 2011 7:36 PM GMT
    Some people have also been assisted by Hypnotherapy to focus on the mind/gut connection aspect of it. The more anxious the mind... can sometimes translate into the more active and upset is the gut..

    There is IBS 100 - which apparentely is a 100 day CD hypno course which by its reviews seems to be mighty helpful. You can also see a hypnotherapist in your area for 1 on 1 sessions (more expensive)

    For me the meds have been very trial and error - tried Elavil (amyltriptilen) did nothing but help with sleep (a good thing) Modulon (no impact) and now trying Bentyl (still need to figure it out)

    interesting about the paleo diet


    Has anyone tried the Elaine Gotschall Carb specific diet - I hear it is very difficult to adhere to but shows promising results

    Also ordered the Book on Stomach woes by Jini Patel who cured her Crohn's and Colitis (YES SHE HAD both) without medication and surgery by doing a number of things
    Her main theory is that all forms of IBS and IBD are initially caused by some pathogen (bacterial/yeast/parasitic) which cannot be effectively attacked by antibiotics and antiparasitics

    She suggests the all amazing Wild Oregano Oil protocol supplemented by a strong probiotic regimen for a course of a few weeks to kill off any remnants of the infection. Once the infection is clearly out of the body, can true healing really occur.

    Anyone else have any tips on how to get rid of abdominal pain

    Any body feel weak, get headaches, feel their hormones are out of whack?


    ITALIC TEXT GOES HERE
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    Nov 01, 2011 8:02 PM GMT
    I don't personally suffer from any gastro-intestinal disease, but my father was Diagnosed with Crohn's in 1991 when I was 4, and I have 'suffered' with his disease for my entire life. 20 years and 4 major Gastric-surgeries later, he is still kickin' it at age 56 (in 2 days!) BUT he has many major triggers. He has 'crohns' days and 'not-so-crohns' days... but the 'Good' days are far between. This recent operation was the second in a series:

    He had intestinal by-pass in March, so had been on an Ostomy Bag until August when 'they put humpty dumpty back together' as he likes to say. The latest stricture (blocked pipes, effectively) was due to a tumour (non cancerous thankfully!) Which was slightly larger than a soft-ball.

    Anyway, long story short, I've had a lot of second-hand experience, as he and I are business partners, not to mention he's my dad! I cook 3 meals a day for him, and see him turn away at about 3/4 of them. I've tried everything from Gluten free, to fat free (in the no-fatty meat sense, not like fat free ken's salad dressing shit!). He is a GATORADE-HOUND. He's been on more probiotics, antibiotics, and steroids than anybody should ever have to put up with, and the problem persists.

    It is NOT something which is cured by medicine. The SYMPTOMS can be treated medically, but the causes, inflmants, and aggravators are dietary in nature. Even after 20 years we're still struggling to find him a diet which suits his case. It has been no short trip, and there are (hopefully!) many more years to go.

    Long story.... well long story kept long (sryz!) I'm ALWAYS on the look out for new books, diet plans, foods, herbs, supplements etc. because my mother and I are MUCH more proactive than he is about this. A) She married the plank, and B) I do NOT want to be landed with this company by myself any time soon! I'd like to keep him around so he can do the dirty work for a few more years anyway!
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    Nov 01, 2011 8:16 PM GMT
    haha JEANDEAU - thanks for the injection in humour in all of this...
    I have Crohn's in my family and knowing the genetic component to it - I am worried that my IBS may eventually become crohn's

    Fortunatly and unfortunately on the net you have those that swear by some regimen, or some product, while others say it does nothing for them.

    I have come to appreciate the trial and error nature of GI disorders.. it also makes sense to me that if the GI tract is affected most other body systems are affected - at the end of the day if your body is not assimilating its nutrients properly other parts of the body may not be getting the essential vit/minerals for their role in doing things in the proper fashion.

    I am please by number of people who have so far posted their own experiences or the experiences of loved ones on here... I am hoping more Real JOCK members will do so - as this community of practice can be beneficial to all of us
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    Nov 01, 2011 8:31 PM GMT
    I forgot the question part of my post... got so caught up blabbing about myself!

    We've been to a number of Nutritionists, some say GLUTEN FREE OR BUST others don't seem to think it would do anything?

    Also, have people heard about this(what seems to be new) EATING RAW- Raw vegitables, raw nutrients, Raw vitamins.. My dad has actually been reading a book about it recently.. which is a good thing.



    Also, just a general Caveat Emptor:

    HUMIRA IS AN AWFUL MEDICATION!!!! DO NOT LET YOUR INSURANCE COMPANY OR DOCTOR PUT YOU ON IT AS CROHN'S TREATMENT!


    My dad was put on it In january of this year, and after 1 initial dosing of the medication, within a week he developed Guillain-Barre syndrome and has effectively been paralysed from the waist down since! He's only just recently regained use (i.e. being able to walk) within the past 2 months.

    It is NOT CROHN'S medication, it's just a cheap nouveau alternative which Insurance companies want to put you on instead of Remicade or the other 'main-stream' usual suspects for IBD.

    Just a general buyer beware there as My dad's had 2 friends who have almost been switched to that lately, and it has SERIOUS side-effects.
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    Nov 01, 2011 8:39 PM GMT
    I've suffered with IBS for years. I've found that coffee, alcohol and spicy foods(all things I love) can trigger bouts. The only one I was able to give up completely is coffee. I know it's worse when I'm stressed out.
  • Sportsfan1

    Posts: 479

    Nov 01, 2011 8:49 PM GMT
    I was diagnosed with ulcerative colitis about 18 years ago. I have had many flares over the years. Right now I am in complete remission. I read all the posts and all of them have good sound advice. I was told to avoid stress, avoid nuts, popcorn and eat lots of green leafy vegetables and whole grains. Do not smoke, avoid caffeine, alcohol and yes, chocolate. Herbal teas with a dash of lemon and honey have a very soothing effect. Drink plenty of water, plenty of rest and do not eat a heavy meal after 7:00 in the evening. Also I try to eat a small cup of non-fat yogurt almost everyday. Be sure to have a colonoscopy every three years. Exercise regularly and be sure you have a good fiber intake. Lots of fresh fruits. All the best!
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    Nov 01, 2011 9:02 PM GMT
    I have the whole IBD thing, although it's never progressed to ulcerative or crohn's thanks to some serious dietary vigilance. I'd suffered it mildly in my 20s but it went haywire after I suffered a massive bacterial infection several years ago after foolishly drinking ditchwater while hiking.

    (I later discovered, through the aid of an infectious disease specialist and my gastro dr, that I'd had intestinal parasites of one kind or another since childhood from swallowing so much pond and creek water on the farm.)

    I've also been lucky to discover my food triggers - garlic, tomatoes, peppers of any kind, soy sauces and curry. Some times too much fruit will set it off as well.

    I've only had to go on antibiotics a few times and tried Lomotil, which the rest of my body hated.

    My savior has been psyllium husk fiber. Not regular Metamucil, but no-sugar-added psyllium husk powder. Combined with regular intake of kefir, that fiber has changed my life. I still suffer occasional bouts of hyperactive digestion and anal fissures brought on my the ensuing diarrhea (consequence of being a runner I guess) but it's NOTHING compared to 2003-2006 when I would spend days at a time in bed and was swallowing cameras at the dr's office on a regular basis.

    I'm reluctant to give advice, per the OP's request, as I feel each body is different and the very nature of IBS/IBD is so person specific, down to your body chemistry and the flora/fauna of our intestines.

    That said, I agree with your peppermint tea. That stuff is amazing and works. I also recommend got hydration and of course psyllium husk fiber. I especially recommend taking said fiber with cranberry juice. Don't ask me why, I discovered this by accident, but I will swear by the increased effectiveness of the fiber in quieting my guts and keeping them clean/smooth by drinking it in cranberry juice.
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    Nov 01, 2011 9:25 PM GMT
    NewYorkAries saidHowever about 5 years ago I started accupuncture treatments. After about 6 months of regular treatments I have been in a constant state of remission.

    Really interesting, have you taken meds in addition to accupuncture?
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    Nov 01, 2011 9:29 PM GMT
    NJPG saidThere is IBS 100 - which apparentely is a 100 day CD hypno course which by its reviews seems to be mighty helpful. You can also see a hypnotherapist in your area for 1 on 1 sessions (more expensive)

    Also ordered the Book on Stomach woes by Jini Patel who cured her Crohn's and Colitis (YES SHE HAD both) without medication and surgery by doing a number of things

    Any body feel weak, get headaches, feel their hormones are out of whack?



    Have you tried to IBS 100? Does it work?

    Am real interested to hear more about the Jini Patel book.

    Yes, weakness, the feeling like it is a struggle to stand and would be easier to sit down. I have gotten that a lot for years. Don't get it as much since starting the Paleo diet, but it is still a problem. Interestingly, it goes away temporarily when exercising.
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    Nov 01, 2011 11:28 PM GMT
    IBD and IBS are completely distinct entities. They do not share a similar pathogenesis and hence cannot be discussed in the same paragraph as if they were connected diseases.

    Inflammatory bowel disease require medical management through a Physician. Irritable bowel syndrome on the other hand, is a pain in the butt, but not something that may kill you!
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    Nov 02, 2011 12:14 AM GMT
    I've been fighting this for about two months now-ish. At first thought I had just become lactose intolerant, but eventually EVERYTHING I ate started to upset my digestive system.

    After reading everything above I am pretty worried about my battle with this in the future haha. I just got on Bentyl and it definitely has helped, but not definitely has not nearly cured me 100% and I don't want to be on the medicine forever. Been eating a lot of fiber in both foods and by supplementation, and that seems to help. Also have been taking the ginger root. You can buy a lot of it for really cheap here.


    I take 2 capsules, so 1.1 g 4 times a day, with meals. I also started taking milk thistle because that is just really good in helping keep the liver healthy and saw palmetto which promotes healthy urinary tract. I don't know, basically since this hit I am very paranoid (which isn't good for IBS) about my insides and am taking a lot of stuff that has been proven to show great benefits if it is dirt cheap. I got beano to save myself some possible embarrassments, but that isn't cheap so some people around me may have to suffer from time to time. Oops icon_eek.gif

    Will have to add peppermint tea to this laundry list!

    Also, have been taking citrucil instead of metamucil just because a good friend suggested that. They are both fiber, but both have different active ingredients. Anyone know of advantages or disadvantages b/w the two?

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    Nov 02, 2011 3:07 AM GMT
    Thanks all for replying and sharing your stories.
    It's hard to discuss with others,,,, as sharing your stomach pooping woes is not a fun conversation ;)

    Interesting on the psyllium husk - any idea why that coupled with cranberry helps.. I was taking the plain metamucil psyllium with no sugars - do you know why the husk is better?

    What exactly is the paleo diet.

    I have also heard of Digestinol as being really effectivie - its purified Aloe Vera which is very beneficial in terms of healing the gut - a 3 month supply is 400 bucks

    Anybody try it?

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    Nov 02, 2011 3:18 AM GMT
    I read that a few people were interested in the Jini Patel stuff. I ordered the book and it is very interesting -

    I also got a PDF of the Wild Oregano protocol as well the probiotic supplementation/probiotic enema

    If anyone is interested send me your email and I will send along!!

    Sharing is part of this struggle ;)

    Anyone have any insight beyond the drugs how to deal with abdo pain?

    The fibre stuff also interests me - I have not done it long enough to see if it helps or not - and might try it with cranberry juice... ive just taken the regular metamucil

    Also a book by Dr. Klein which I have in PDF which talks about the raw food diet and how he achieved full remission from CROHN"S... just seems too hard -- happy to send that also if you are interested

  • Kwokpot

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    Nov 02, 2011 3:46 AM GMT
    [quote][cite]NJPG said[/citeThe fibre stuff also interests me - I have not done it long enough to see if it helps or not - and might try it with cranberry juice... ive just taken the regular metamucil

    [/quote]
    I understand how additional fiber should help with GI problems, but doesn't adding alot more fiber also contribute to bloating and gas? I've made small fiber additions to my diet, but I know in the past when I increased the fiber intake the additional bloating and gas was too much for me to take.

    What fiber products seem to have the LEAST amount of bloating & gas side effects?
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    Nov 02, 2011 3:53 AM GMT
    Kwokpot said[quote][cite]NJPG said[/citeThe fibre stuff also interests me - I have not done it long enough to see if it helps or not - and might try it with cranberry juice... ive just taken the regular metamucil


    I understand how additional fiber should help with GI problems, but doesn't adding alot more fiber also contribute to bloating and gas? I've made small fiber additions to my diet, but I know in the past when I increased the fiber intake the additional bloating and gas was too much for me to take.

    What fiber products seem to have the LEAST amount of bloating & gas side effects?[/quote]

    Citrucel advertises on the bottle that it is the ONLY regulatory fiber that does not cause excess bloating or gas.
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    Nov 02, 2011 4:15 AM GMT
    Longblack saidIBD and IBS are completely distinct entities. They do not share a similar pathogenesis and hence cannot be discussed in the same paragraph as if they were connected diseases.

    Inflammatory bowel disease require medical management through a Physician. Irritable bowel syndrome on the other hand, is a pain in the butt, but not something that may kill you!


    This ^^^

    If you have Crohn's disease or ulcerative colitis (IBD), you have a serious chronic disease with no real cure. It is an autoimmune disease and there is still much debate about what triggers its onset. You will need a very good gastroenterologist who will end up being a long term partner to help you manage your disease and hopefully get you into a long term period of remission. You get diagnosed with IBD by getting a colonoscopy because they can actually see the lesions in the intestines.

    IBS (Irritable Bowel Syndrome aka nervous stomach aka colitis) is much more temporary and manageable. It can be caused by diet, stress, and with some trial and error you can find the trigger. Not so with IBD.

    I struggled with ulcerative colitis for 15 years and with the help of a great doc, I finally got the disease under control 10 years ago. Hated it when people would confuse colitis with ulcerative colitis and tell me that I should just learn how to deal with stress. Who wouldn't be stressed if they were going to the bathroom 20 times a day!

    I'd be happy to share any other info on IBD.
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    Nov 02, 2011 1:33 PM GMT
    AGS89 saidI've been fighting this for about two months now-ish. At first thought I had just become lactose intolerant, but eventually EVERYTHING I ate started to upset my digestive system.


    At one point I became severely sensitive to everything I ate, but that was before being diagnosed with ulcerative colitis. I think it was just massive multiple food sensitivities. But I found help. For more than a decade I had followed the 6-meal a day plan, where you basically eat all day long. This was and still is widely recommended by doctors and experts for all kinds of issues as the best way to eat. But I had one book that said this is in fact a destructive way to eat. That it batters and exhausts the digestive system (including stomach, liver, pancreas, adrenals, bowels, and so forth). It said to eat 2 or three times per day, zero snacking, at regular times. Allow at least 5 hours between meals, no less. This allows proper digestion to occur and gives internal organs a chance to rest. Drink very little with a meal, and drink lots of water between meals. Eat healthy food only, avoid sweets and sweet drinks including fruit juice. This simple change in meal plan enabled me to get my life back and to slowly return to eating a variety of foods again.