EPILEPSY- please read.

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    Dec 24, 2012 6:10 PM GMT
    Hey folks, how you doing?! Thanx for opening this forum to read and see what I'm writing about Epilepsy. I was diagnosed about 3yrs ago, after the 3rd or 4th seizure I had. After so many years, we were able to catch my triggers and "slow" down my seizures, but they continued. After so many medication failures and tweaks here and there, I've finally been on some medications that have some what stopped the seizures. Currently at 22yrs old, I'm without a license because of an accident I had because of a seizure. (I was allowed to drive at the time, so dont make any rash comments) Recently, my blood tests have been coming up perfect besides my sodium levels. My sodium levels are too LOW, not too high, too LOW. One of the medications has a history of dropping patients sodium levels to the floor, but for some reason mine is becoming too extreme that I might have to tweak the meds again (which i dont wanna do). The doctor was simple and said eat some chips. I havent drank alcohol since July 23rd, 2011. I Googled how too much water intake clears out your system and can lower sodium levels. Do any of you know something else I can do besides "eating potatoe chips"? I've been trying to stop drinking so much water and mixing it with gatorade or juice, but with me not drinking alochol or sodas anymore, all i ever wanna drink is water. Also, if anybody has experience with Epilepsy, I'd enjoy your thoughts and comments as well.

    Thanx guys!
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    Dec 24, 2012 6:59 PM GMT
    Welcome to RJ. I'm also epileptic, though I've been uninsured and unmedicated for the last year myself. There's one other epileptic I know about on this site. Think its cool you can drive. Not many of us can. If anything I hope just enjoy this site.
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    Dec 25, 2012 5:34 AM GMT
    Epilepsy and out of body experiences...:..
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    Dec 25, 2012 5:58 AM GMT
    Google for foods that are high in sodium.

    If all else fails, drink shitloads of Pedialyte. That's many people's drink of choice after intense cardio (which depletes sodium levels).
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    Dec 25, 2012 8:00 AM GMT
    Pepperettes without guilt!

    As for drinks.. Isn't V8 really salty? Could you drink a bit of that now and then? It's certainly healthier than pepperettes.
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    Dec 27, 2012 5:03 AM GMT
    The treatment for low sodium, or hyponatremia, is not to eat more salt. It is to restrict the amount of fluid you drink. If you're doctor is not aware of this, you need a new doctor. Was it a neurologist you spoke with? If so, you need to meet with an internal medicine doctor.

    In general, by restricting your fluid intake to less than 1.5 L/day for several weeks, you can reset the osmostat in your pituitary and reset your sodium levels. This requires repeat sodium levels to follow for correction, and I would not try to do it on your own.
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    Jan 15, 2013 5:30 AM GMT
    Lore_menz0 saidWelcome to RJ. I'm also epileptic, though I've been uninsured and unmedicated for the last year myself. There's one other epileptic I know about on this site. Think its cool you can drive. Not many of us can. If anything I hope just enjoy this site.


    i actually do not drive at all. I was able to drive after my seizures when they originally started, after 6 months from my last seizure type of event, even if i didnt go to the hospital, id stay faithful to it and restrict myself for 6 full months. it just happened to be during my "legal" period to drive, and then of course ive yet to get behind the wheel. everybody else, THANX for your help about how to correct my sodium levels and I will make sure to address this issue with my neurologist and see what he knows about what youve told me.
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    Jan 15, 2013 6:24 PM GMT
    Did the doctor say what is the primary cause of epilepsy? & what kind of epilepsy did you had?

    When you drink water....it is absorbed into blood vessels....which increases the blood volume & decreases the concentration! (blood gets diluted)
    so, don't drink excess water....to raise your sodium levels back to normal just eat some salty foods....

    Don't eat banana...it has high potassium(which has opposite function of sodium)
  • LJay

    Posts: 11612

    Jan 15, 2013 6:34 PM GMT
    You could write these suggestions down and take them to your neurologist to discuss, but the doc is the one to advise you.

    Transportation is a rough issue for epileptics. I hope your area has enough public transport to help you with shopping, enertainment, doctor visits, etc.

    PS--Is there a home test for sodium levels?
  • 7913p

    Posts: 25

    Feb 04, 2014 2:03 AM GMT
    Hi My name is Paul I have Epileptic Seizures. I have grand mal seizures. I am on medicine and are control for the most part. They do not know what causes my seizures.
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    Feb 04, 2014 2:22 AM GMT
    fear not. they are developing a pill based on extremely low potency of THC, designed for kids, specifically designed to treat epilepsy.

    it's called "Charlotte's Web" and I promise you it will work better than any existing epilepsy medications
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    Feb 04, 2014 2:59 AM GMT
    7913p said Hi My name is Paul I have Epileptic Seizures. I have grand mal seizures. I am on medicine and are control for the most part. They do not know what causes my seizures.

    I would be glad to discuss & share with you, and with others here who have epilepsy, my own experiences.

    I don't get what were formerly termed "grand mal", that is, convulsive seizures. I get "petit mal" (another somewhat obsolete term), or partial complex seizures, where I basically pass out, or have disoriented behavior that could be mistaken for drunkenness or drug use.

    I always wear a medic alert bracelet so first responders will realize my problem, and not misidentify my condition, even mistakingly arresting me. I also tell all my friends about my epilepsy, despite many epileptics being ashamed of it, because I want them to know the truth, not be afraid of it or of me, and know what to do. (Which is actually very little and easy, just keep me quiet, safe, and wait it out, usually a matter of minutes, often no 911 needed).

    The cause is likely a series of traumatic head injuries in the Army, which is why my epilepsy is service connected, making me rated as fully disabled. It ended my career before I was ready. icon_sad.gif

    But the good news is that I respond well to medications, and go for long periods without any seizures. As a result I am not legally barred from driving at present. But it does seem a possible cause of my terrible short-term memory problems, and thinking processes that sometimes get temporarily muddled, as if having a senile moment.

    If anyone with epilepsy would like to PE me I'd be happy to share with you. I'm not a doctor, can't medically advise, but can certainly compare personal experiences with you.