Open Letter: Let's Stop Falling Behind on HIV

  • metta

    Posts: 39104

    Jun 09, 2013 3:18 AM GMT
    Open Letter: Let's Stop Falling Behind on HIV


    http://www.advocate.com/commentary/2013/06/03/open-letter-lets-stop-falling-behind-hiv
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    Jun 09, 2013 12:38 PM GMT
    Unfortunately HIV has changed from a terminal desease to a chronic decease. Pharmaceutical companies benefit from the relaxed concern about increased HIV infection. It used to be taboo for porn to be bareback no condoms. Now bareback porn is in. I wouldn't look for the return of an Aides Walk anytime soon. icon_neutral.gif
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    Jun 09, 2013 12:45 PM GMT
    Surry saidUnfortunately HIV has changed from a terminal desease to a chronic decease. Pharmaceutical companies benefit from the relaxed concern about increased HIV infection. It used to be taboo for porn to be bareback no condoms. Now bareback porn is in. I wouldn't look for the return of an Aides Walk anytime soon. icon_neutral.gif

    We just had an AIDS walk here a few months ago. And my husband & I will be participating in the 10th annual HIV/AIDS bicycle ride to Key West in November, that he helped found. Each year we have more riders & crew and raise more money than the last. And there are other walks & rides around the US. So I'm not sure about the accuracy of your last sentence.

    And I wonder in what sense it's "unfortunate" that "HIV has changed from a terminal disease to a chronic disease"? My concern is that this is really not a correct classification, when health agencies and insurance companies do that for possibly their own agendas. HIV can indeed be terminal, and very quickly for certain individuals, especially those not receiving care.

    And while some people may outlive the disease and die of something else first, that's not true for many. People still die of HIV/AIDS, like my partner after resisting it for 12 years. And despite his taking basically the same treatment regimen as exists today, and being attended by the best doctors in the field.
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    Jun 09, 2013 1:04 PM GMT
    Great for Key West.

    In Maryland/DC area participation and enthusiasm for HIV walks has demonished. What used to draw 100,000 now only has barely 10,000 participants. MS and Cancer walks are taking center stage.
  • thatirishbast...

    Posts: 3523

    Jun 09, 2013 1:08 PM GMT
    Surry saidUnfortunately HIV has changed from a terminal desease to a chronic decease. Pharmaceutical companies benefit from the relaxed concern about increased HIV infection. It used to be taboo for porn to be bareback no condoms. Now bareback porn is in. I wouldn't look for the return of an Aides Walk anytime soon. icon_neutral.gif


    How is this unfortunate? I'd rather my mates with HIV have the chance to live a full life.
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    Jun 09, 2013 1:38 PM GMT
    Whats unfortunate is the that the mindset of labeling as HIV as chronic reduced overall funding . There is less urgency for prevention because its not considered a death sentence. In the 80's , 90's there were ads, public announcements, conventions and overall heightened awareness. The reduced concern for HIV is the reason for the article "Let's stop falling behind on HIV", thus this thread.
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    Jun 09, 2013 1:52 PM GMT
    People have stopped talking about it. The fact that testing for it is still not routine when patients go in for a physical and that you have to ask you doctor about it. You don't see any commercials for it or ever really hear about it. There is more publicity about rescuing shelter animals than there is about the costly disease. I am blessed that I've managed to not catch it but I know a few partners who weren't as lucky and a others who don't care to know.
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    Jun 09, 2013 1:58 PM GMT
    Surry saidWhats unfortunate is the that the mindset of labeling as HIV as chronic reduced overall funding . There is less urgency for prevention because its not considered a death sentence. In the 80's , 90's there were ads, public announcements, conventions and overall heightened awareness. The reduced concern for HIV is the reason for the article "Let's stop falling behind on HIV", thus this thread.

    If economics is the driving force, that would still be a strong incentive to cure HIV. Long-term survivors cost society money & resources. Treating people indefinitely through coverage like Medicare and Medicade costs more money than curing them. And those without any coverage are still a drain on public funds, for emergency hospital treatment.

    It would actually be cheaper (though I note this only for rhetorical purposes) to let HIV patients die quickly, and reduce their cost to the health care system. The chronically ill are almost always more expensive to keep alive than those who die quickly.

    As for the pharmaceutical industry, this argument of profit motive is always present, whether for HIV or for cancer. Their decision to allocate research dollars to permanent cure versus long-term maintenance with their drugs is a murky area. Yet until there is a total cure, drugs that sustain are better than death.

    For this reason more money should be directed to non-profit research channels, whose motives can only be final cure, not permanent dependence on drugs. And indeed much is being done in that area. But HIV is one of the most difficult medical challenges ever faced, along with cancer, so I wouldn't assume the failures so far are entirely the fault of pharmaceutical industry greed.
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    Jun 09, 2013 2:06 PM GMT
    ART_DECO said
    Surry saidWhats unfortunate is the that the mindset of labeling as HIV as chronic reduced overall funding . There is less urgency for prevention because its not considered a death sentence. In the 80's , 90's there were ads, public announcements, conventions and overall heightened awareness. The reduced concern for HIV is the reason for the article "Let's stop falling behind on HIV", thus this thread.

    If economics is the driving force, that would still be a strong incentive to cure HIV. Long-term survivors cost society money & resources. Treating people indefinitely through coverage like Medicare and Medicade costs more money than curing them. And those without any coverage are still a drain on public funds, for emergency hospital treatment.

    It would actually be cheaper (though I note this only for rhetorical purposes) to let HIV patients die quickly, and reduce their cost to the health care system. The chronically ill are almost always more expensive to keep alive than those who die quickly.

    As for the pharmaceutical industry, this argument of profit motive is always present, whether for HIV or for cancer. Their decision to allocate research dollars to permanent cure versus long-term maintenance with their drugs is a murky area. Yet until there is a total cure, drugs that sustain are better than death.

    For this reason more money should be directed to non-profit research channels, whose motives can only be final cure, not permanent dependence on drugs. And indeed much is being done in that area. But HIV is one of uthe most difficult medical challenges ever faced, along with cancer, so I wouldn't assume the failures so far are entirely the fault of pharmaceutical industry greed.


    I agree with you 100%.
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    Jun 09, 2013 2:17 PM GMT
    Myol saidPeople have stopped talking about it. The fact that testing for it is still not routine when patients go in for a physical and that you have to ask you doctor about it. You don't see any commercials for it or ever really hear about it. There is more publicity about rescuing shelter animals than there is about the costly disease. I am blessed that I've managed to not catch it but I know a few partners who weren't as lucky and a others who don't care to know.


    Society is not ready for including HIV testing as part of a physical. There are too many stigmas associated with HIV which unmotivates people to accept the reality of the disease. For instance on RJ maybe 1 in 100 (my estimate) profiles are identified as HIV +. This site falls well below national statics.

    I agree, HIV test should be part of the physical. Though it would discourage some from going to the doctor.
  • HottJoe

    Posts: 21366

    Jun 10, 2013 4:43 PM GMT
    thatirishbastard said
    Surry saidUnfortunately HIV has changed from a terminal desease to a chronic decease. Pharmaceutical companies benefit from the relaxed concern about increased HIV infection. It used to be taboo for porn to be bareback no condoms. Now bareback porn is in. I wouldn't look for the return of an Aides Walk anytime soon. icon_neutral.gif


    How is this unfortunate? I'd rather my mates with HIV have the chance to live a full life.


    +1
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    Jun 10, 2013 4:47 PM GMT
    Surry saidUnfortunately HIV has changed from a terminal desease to a chronic decease. Pharmaceutical companies benefit from the relaxed concern about increased HIV infection. It used to be taboo for porn to be bareback no condoms. Now bareback porn is in. I wouldn't look for the return of an Aides Walk anytime soon. icon_neutral.gif


    Come this fall healthcare will be accessible to all so why bother playing safe?
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    Jun 10, 2013 9:07 PM GMT
    HottJoe said
    thatirishbastard said
    Surry saidUnfortunately HIV has changed from a terminal desease to a chronic decease. Pharmaceutical companies benefit from the relaxed concern about increased HIV infection. It used to be taboo for porn to be bareback no condoms. Now bareback porn is in. I wouldn't look for the return of an Aides Walk anytime soon. icon_neutral.gif


    How is this unfortunate? I'd rather my mates with HIV have the chance to live a full life.


    +1


    Whats unfortunate is the that the mindset of labeling as HIV as chronic reduced overall funding . There is less urgency for prevention because its not considered a death sentence. In the 80's , 90's there were ads, public announcements, conventions and overall heightened awareness. The reduced concern for HIV is the reason for the article "Let's stop falling behind on HIV", thus this thread.
  • HottJoe

    Posts: 21366

    Jun 13, 2013 5:55 PM GMT
    Surry said
    HottJoe said
    thatirishbastard said
    Surry saidUnfortunately HIV has changed from a terminal desease to a chronic decease. Pharmaceutical companies benefit from the relaxed concern about increased HIV infection. It used to be taboo for porn to be bareback no condoms. Now bareback porn is in. I wouldn't look for the return of an Aides Walk anytime soon. icon_neutral.gif


    How is this unfortunate? I'd rather my mates with HIV have the chance to live a full life.


    +1


    Whats unfortunate is the that the mindset of labeling as HIV as chronic reduced overall funding . There is less urgency for prevention because its not considered a death sentence. In the 80's , 90's there were ads, public announcements, conventions and overall heightened awareness. The reduced concern for HIV is the reason for the article "Let's stop falling behind on HIV", thus this thread.


    Sounds like you want people to die so you can make an example of them. That's sick. Also, there is no proof that it would stop the spread of AIDS. In fact, it would've disappeared in the 80s, prior to treatment options, if your assumption was correct, but it didn't.
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    Jun 13, 2013 6:08 PM GMT
    HottJoe said
    Surry said
    HottJoe said
    thatirishbastard said
    Surry saidUnfortunately HIV has changed from a terminal desease to a chronic decease. Pharmaceutical companies benefit from the relaxed concern about increased HIV infection. It used to be taboo for porn to be bareback no condoms. Now bareback porn is in. I wouldn't look for the return of an Aides Walk anytime soon. icon_neutral.gif


    How is this unfortunate? I'd rather my mates with HIV have the chance to live a full life.


    +1


    Whats unfortunate is the that the mindset of labeling as HIV as chronic reduced overall funding . There is less urgency for prevention because its not considered a death sentence. In the 80's , 90's there were ads, public announcements, conventions and overall heightened awareness. The reduced concern for HIV is the reason for the article "Let's stop falling behind on HIV", thus this thread.


    Sounds like you want people to die so you can make an example of them. That's sick. Also, there is no proof that it would stop the spread of AIDS. In fact, it would've disappeared in the 80s, prior to treatment options, if your assumption was correct, but it didn't.


    Sounds like you didn't understand that unfortunate is in the context of the article. I already explained it. What's sick is jumping to conclusions and passing judgement.
  • HottJoe

    Posts: 21366

    Jun 14, 2013 12:27 AM GMT
    Surry said
    HottJoe said
    Surry said
    HottJoe said
    thatirishbastard said
    Surry saidUnfortunately HIV has changed from a terminal desease to a chronic decease. Pharmaceutical companies benefit from the relaxed concern about increased HIV infection. It used to be taboo for porn to be bareback no condoms. Now bareback porn is in. I wouldn't look for the return of an Aides Walk anytime soon. icon_neutral.gif


    How is this unfortunate? I'd rather my mates with HIV have the chance to live a full life.


    +1


    Whats unfortunate is the that the mindset of labeling as HIV as chronic reduced overall funding . There is less urgency for prevention because its not considered a death sentence. In the 80's , 90's there were ads, public announcements, conventions and overall heightened awareness. The reduced concern for HIV is the reason for the article "Let's stop falling behind on HIV", thus this thread.


    Sounds like you want people to die so you can make an example of them. That's sick. Also, there is no proof that it would stop the spread of AIDS. In fact, it would've disappeared in the 80s, prior to treatment options, if your assumption was correct, but it didn't.


    Sounds like you didn't understand that unfortunate is in the context of the article. I already explained it. What's sick is jumping to conclusions and passing judgement.

    No, I didn't misunderstand you. You said this: "Unfortunately HIV has changed from a terminal desease to a chronic decease."
    That means you wish it were still a terminal disease, because you think then everyone would be "scared straight," as it were.... I'm saying that that was the case in the 80s and 90s and it didn't stop the spread of the disease. If infections are on the rise because people are being more reckless and are not getting the message, then that's awful---I agree with you there---but thank GOD there is medication and people aren't dying like they once did.

    P.S. I didn't pass any judgments. I said the thought that treatments are unfortunate is a sick concept, because it is.
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    Jun 14, 2013 8:34 PM GMT
    HottJoe saidP.S. I didn't pass any judgments. I said the thought that treatments are unfortunate is a sick concept, because it is.


    Unclear wording on Surry's part is my guess. My interpretation of what he said is that it's unfortunate that society no longer perceives AIDS as an urgent problem now that it's treatable.
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    Jun 14, 2013 9:26 PM GMT
    HottJoe said
    Surry said
    HottJoe said
    Surry said
    HottJoe said
    thatirishbastard said
    Surry saidUnfortunately HIV has changed from a terminal desease to a chronic decease. Pharmaceutical companies benefit from the relaxed concern about increased HIV infection. It used to be taboo for porn to be bareback no condoms. Now bareback porn is in. I wouldn't look for the return of an Aides Walk anytime soon. icon_neutral.gif


    How is this unfortunate? I'd rather my mates with HIV have the chance to live a full life.


    +1


    Whats unfortunate is the that the mindset of labeling as HIV as chronic reduced overall funding . There is less urgency for prevention because its not considered a death sentence. In the 80's , 90's there were ads, public announcements, conventions and overall heightened awareness. The reduced concern for HIV is the reason for the article "Let's stop falling behind on HIV", thus this thread.


    Sounds like you want people to die so you can make an example of them. That's sick. Also, there is no proof that it would stop the spread of AIDS. In fact, it would've disappeared in the 80s, prior to treatment options, if your assumption was correct, but it didn't.


    Sounds like you didn't understand that unfortunate is in the context of the article. I already explained it. What's sick is jumping to conclusions and passing judgement.

    No, I didn't misunderstand you. You said this: "Unfortunately HIV has changed from a terminal desease to a chronic decease."
    That means you wish it were still a terminal disease, because you think then everyone would be "scared straight," as it were.... I'm saying that that was the case in the 80s and 90s and it didn't stop the spread of the disease. If infections are on the rise because people are being more reckless and are not getting the message, then that's awful---I agree with you there---but thank GOD there is medication and people aren't dying like they once did.

    P.S. I didn't pass any judgments. I said the thought that treatments are unfortunate is a sick concept, because it is.


    Ok perhaps I was unclear.

    BTW I am HIV+, have been for a while. Now you see why the "sick" criticism was perplexing?

    Anyway we're on the same page.
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    Jun 14, 2013 9:29 PM GMT
    Lumpynose said
    HottJoe saidP.S. I didn't pass any judgments. I said the thought that treatments are unfortunate is a sick concept, because it is.


    Unclear wording on Surry's part is my guess. My interpretation of what he said is that it's unfortunate that society no longer perceives AIDS as an urgent problem now that it's treatable.



    Thank youicon_biggrin.gif

    Otherwise I would be a HIV+ guy that sees medical treatment as unfortunate.