Chronic Fatigue Syndrome Renamed

  • Posted by a hidden member.
    Log in to view his profile

    Feb 12, 2015 9:18 PM GMT
    It sounds like a joke, but people take this condition seriously. After spending $1M studying the matter, the Institute of Medicine has recommended renaming the malady as "Systemic Exertion Intolerance Disease." (SEID)

    “This name captures a central characteristic of the disease: the fact that exertion of any sort—physical, cognitive, or emotional—can adversely affect patients in many organ systems and in many aspects of their lives,” the committee members, chaired by Ellen Wright Clayton of Vanderbilt University Medical Center, wrote in a summary of their report.

    The new diagnostic criteria include an impairment in participating in normal activities for at least six months; unrefreshing sleep; “post-exertional malaise”; and cognitive impairments or a worsening of symptoms that can be relieved by lying down. Such specifics “will in the end get more people cared for and treated,” Peter Rowe, a committee member, pediatrician, and chronic-fatigue expert at Johns Hopkins Children’s Center, told Nature News.

    I wonder if anybody has tried simply turning off the television?

  • Svnw688

    Posts: 3343

    Feb 12, 2015 9:33 PM GMT
    CFS? More like, hypochondriacs never let go. My current b/f is a hypochondriac. I tell him to his face every time he starts in about a condition he thinks he might have.

    Since being together for two years I've listened to ALLEGED, heart murmurs, low blood sugar, high blood pressure, cluster headaches, migraines, a brain tumor causing one pupil to dilate larger than the other, 3 MRIs, an ER trip to get 5 stitches for his mere hand wound, Rogaine to combat nonexistent male pattern baldness, a penchant for popping Sudafed for "colds," "walking pneumonia" twice, bronchitis, a broken ankle, and other nonexistent maladies I can't even think of.

    Of all those things, he legitimately had a broken ankle, a small cut on his hand, and a few colds. This guy is 6'7, 100% masculine, and a former fighter pilot. I don't get it. Some guys are just wimps. I jokingly call him a "glass child" and hypochondriac all the time--the minute he starts telling me about a new symptom. I think it's a mental disorder, but because it doesn't bother me (or him) too much, I let it go since nobody's perfect. But this CFS crap is right in the same vein. I can't with this BS.
  • Posted by a hidden member.
    Log in to view his profile

    Feb 13, 2015 2:45 PM GMT
    Mind you, CFS (or SEID now?) may not be a syndrome in and of itself - try distinguishing it, for example, from the effects of mild to moderate depression.

    It is quite possible that's what it really is...

  • starboard5

    Posts: 969

    Feb 13, 2015 4:30 PM GMT
    It goes without saying (but I'll do it anyway) that this will be one hugely abused diagnosis.
  • Posted by a hidden member.
    Log in to view his profile

    Feb 13, 2015 5:41 PM GMT
    Well I'm going to abuse it a lot. "Sorry Babe, I'd help you move that refrigerator, but my "exertion intolerance" is flaring up." icon_cry.gif
  • Rowing_Ant

    Posts: 1504

    Feb 14, 2015 1:00 PM GMT
    I suffer from CHronic Fatigue Syndrome.

    I developed it after having a very, very bad bout of Glandular Fever which can leave one with something called Post-Viral Fatigue.

    It is not a "made up" syndrome or "all in the mind" or an excuse to be "lazy".

    Commnets like "I wonder if anyone tried turning off the television" are hurtful and not useful.

    There are some days when I have so little energy I cannot get out of bed. Some days climbing the stairs is too much effort and I have to crawl up on hands an knees.

    This of cousre severely affects the exercise I can do, my levels of stress tollerance and also my depression (I'm a manic depression).