Is anyone else dealing with...Meniere's Disease?

  • Posted by a hidden member.
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    Feb 23, 2015 12:37 AM GMT
    I am newly diagnosed (less than a month) with this disease and have been really taking a beating over this....my balance is wrecked! The tinnitus is non-stop and so loud it wakes me, and I have lost hearing... 75% in my right ear and 30% in my left ear. Very frustrated. The nausea is B-A-D from the vertigo. It hits without warning and for different lengths of time. The fullness and pressure in my ears is painful like a bad ear infection.....too many medications and many dietary and lifestyle changes....seems to be tied back to my TBI's of 2012, and some to the chemo meds of last year.....Tired of this shit! OMG!....if I do another fucking CT or MRI scan....I will loose my shit quickly! A claustrophobe in, even the "open" model, is way too tight! I need a valium to get me through that shit!
    Anyone got a better approach?icon_rolleyes.gif
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    Feb 23, 2015 11:33 AM GMT
    That sounds aweful man! I honestly would suggest maybe meditation. Not only does it calms your mind, it helps with various other areas from mental to the physical. I'm not a hippy and I don't practice it but I have friends who have changed quite a bit from it.

    There is this one thing I heard about Menieres...I don;t know if it's true....but deep sea diving. But it can be very dangerous with someone in your condition too. It's just the equal amounts of pressure from the water doing something to your inner ear, base of your skull, sinuses, etc. It can be very helpful in relieving symptoms for hours, days, even weeks.
  • TheBaise

    Posts: 363

    Feb 23, 2015 2:21 PM GMT
    Dude / a woman I know has this / and is doing well on whatever the new meds are. She also lost some hearing / and couldn't drive until she got to a specialist & got some serious help. Now / with meds, a hearing aid & all, she's driving again & doing all her normal activities again.
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    Feb 23, 2015 7:30 PM GMT
    I just have ringing in my ears. I don't have problems with my balance or nausea etc. The ringing I've gotten used to.
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    Feb 24, 2015 5:15 AM GMT
    Sorry to hear that sporty.Pray that God will grant you the gift of healing.God bless you!
  • LJay

    Posts: 11612

    Feb 24, 2015 5:18 PM GMT
    Really sorry that you are going through such a rough time.The meditation idea is a good one. Maybe you can set up a safe environment where you can make yourself as comfortable as possible--a recliner or quiet bedroom--and purposely take some time, even when you are not having acute symptoms,to relax and rest with or without focus. I found this helpful when I was doing chemo. And prayer helps some, too.

    Good luck with managing this. You will find that you are stronger than you think.
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    Feb 26, 2015 12:49 PM GMT
    YOGA, meds and diet are all my friends on this....stronger core muscles to help with balance, quiet and calm the mind and lower the sodium and caffeine..... it helps. thanks.