Open letter from a HIV+ 22 years old girl

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    Aug 23, 2015 7:41 AM GMT
    Nice read

    http://aplus.com/a/open-letter-from-an-hiv-positive-22-year-old
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    Aug 25, 2015 9:21 PM GMT
    A lot of red flags:

    "It takes time because my virus has already mutated, it is resistant to a certain molecule that prevents me from taking certain antiretrovirals."

    She didn't get the right meds. If she had been infected and only given PrEP meds, it is not enough and can cause resistance.

    "Without going into details, the virus may develop resistance to antiretroviral drugs and mutate. Contrary to what I thought, somewhat naively perhaps, I can’t have sex with another HIV-positive person unprotected because I would take the risk of being infected by the virus again, which may well have mutations other than mine. This undoubtedly complicates my treatment options."

    Superinfections are at the time or near the time of initial infection. ART prevents HIV transmission AND reinfection ..to or from. I've posted studies on that.

    The yellow eyes are very unusual. I'd seek a second opinion.

    "It takes time because my virus has already mutated, it is resistant to a certain molecule that prevents me from taking certain antiretrovirals." The doctor fucked up big time. He or she didn't prescribe or take an essential medication.

    "Truvada is quite aggressive" This a translation from French. Something was lost.

    It was written in 2012. There's a lot of new and updated information out there.







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    Aug 26, 2015 12:06 PM GMT
    timmm55 saidA lot of red flags:

    "It takes time because my virus has already mutated, it is resistant to a certain molecule that prevents me from taking certain antiretrovirals."

    She didn't get the right meds. If she had been infected and only given PrEP meds, it is not enough and can cause resistance.

    "Without going into details, the virus may develop resistance to antiretroviral drugs and mutate. Contrary to what I thought, somewhat naively perhaps, I can’t have sex with another HIV-positive person unprotected because I would take the risk of being infected by the virus again, which may well have mutations other than mine. This undoubtedly complicates my treatment options."

    Superinfections are at the time or near the time of initial infection. ART prevents HIV transmission AND reinfection ..to or from. I've posted studies on that.

    The yellow eyes are very unusual. I'd seek a second opinion.

    "It takes time because my virus has already mutated, it is resistant to a certain molecule that prevents me from taking certain antiretrovirals." The doctor fucked up big time. He or she didn't prescribe or take an essential medication.

    "Truvada is quite aggressive" This a translation from French. Something was lost.

    It was written in 2012. There's a lot of new and updated information out there.


    Stop making up excuses and accept living with HIV is not as simple as to have a cold.
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    Aug 26, 2015 12:09 PM GMT
    MuchMoreThanMuscle said
    David666k saidNice read

    http://aplus.com/a/open-letter-from-an-hiv-positive-22-year-old


    A "nice read?" Why is it nice? What's nice about reading about a young woman who contracted HIV at the tender age of twenty?

    Please elaborate why you think this is "nice."

    Because it clearly shows hows the life of a poz person nowadays from a neutral point of view, not a biased one like timmm55 and yours. Its horrible and unfortunate this girl is going through that but its nice she was responsible and kind enough to share her experience with us.
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    Aug 26, 2015 5:44 PM GMT
    David666k said
    timmm55 saidA lot of red flags:

    "It takes time because my virus has already mutated, it is resistant to a certain molecule that prevents me from taking certain antiretrovirals."

    She didn't get the right meds. If she had been infected and only given PrEP meds, it is not enough and can cause resistance.

    "Without going into details, the virus may develop resistance to antiretroviral drugs and mutate. Contrary to what I thought, somewhat naively perhaps, I can’t have sex with another HIV-positive person unprotected because I would take the risk of being infected by the virus again, which may well have mutations other than mine. This undoubtedly complicates my treatment options."

    Superinfections are at the time or near the time of initial infection. ART prevents HIV transmission AND reinfection ..to or from. I've posted studies on that.

    The yellow eyes are very unusual. I'd seek a second opinion.

    "It takes time because my virus has already mutated, it is resistant to a certain molecule that prevents me from taking certain antiretrovirals." The doctor fucked up big time. He or she didn't prescribe or take an essential medication.

    "Truvada is quite aggressive" This a translation from French. Something was lost.

    It was written in 2012. There's a lot of new and updated information out there.


    Stop making up excuses and accept living with HIV is not as simple as to have a cold.


    Certainly it isn't a cold. But it's her psychological health I'm worried about. She mentions her chronic depression, she wishes for pity, she feels like she's let down AIDS activists, she's apologetic for being young and poor to get drug assistance.

    That's a lot of guilt.

    She just found out 2 years earlier she was POZ when she wrote this letter. There's an emotional gambit most go through after an HIV diagnosis. It's been 3 years since, I hope she has adjusted better.

    5 years ago she got a lot of information. Some of the medical info is not current. I don't know French, but I think I will try and follow up on her letter. She needs (or needed) support.

    She feels damaged, that's why you like the letter I bet. You like to inflict hostility.
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    Aug 26, 2015 5:54 PM GMT
    So very sad. Seems she was probably a bit of a tortured soul before her diagnosis. Maybe that's why she was so careless? I've known a few poz people personally that were a bit like her. If you talk to poz people in person, paticularly hetero ones, they typically don't idealize or downplay living with HIV the same way a lot of gay guys online try to.
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    Aug 26, 2015 6:00 PM GMT
    CODY4U saidSo very sad. Seems she was probably a bit of a tortured soul before her diagnosis. Maybe that's why she was so careless? I've known a few poz people personally that were a bit like her. If you talk to poz people in person, paticularly hetero ones, they typically don't idealize or downplay living with HIV the same way a lot of gay guys online try to.

    Completly agree with that
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    Aug 26, 2015 6:09 PM GMT
    timmm55 said
    David666k said
    timmm55 saidA lot of red flags:

    "It takes time because my virus has already mutated, it is resistant to a certain molecule that prevents me from taking certain antiretrovirals."

    She didn't get the right meds. If she had been infected and only given PrEP meds, it is not enough and can cause resistance.

    "Without going into details, the virus may develop resistance to antiretroviral drugs and mutate. Contrary to what I thought, somewhat naively perhaps, I can’t have sex with another HIV-positive person unprotected because I would take the risk of being infected by the virus again, which may well have mutations other than mine. This undoubtedly complicates my treatment options."

    Superinfections are at the time or near the time of initial infection. ART prevents HIV transmission AND reinfection ..to or from. I've posted studies on that.

    The yellow eyes are very unusual. I'd seek a second opinion.

    "It takes time because my virus has already mutated, it is resistant to a certain molecule that prevents me from taking certain antiretrovirals." The doctor fucked up big time. He or she didn't prescribe or take an essential medication.

    "Truvada is quite aggressive" This a translation from French. Something was lost.

    It was written in 2012. There's a lot of new and updated information out there.


    Stop making up excuses and accept living with HIV is not as simple as to have a cold.


    Certainly it isn't a cold. But it's her psychological health I'm worried about. She mentions her chronic depression, she wishes for pity, she feels like she's let down AIDS activists, she's apologetic for being young and poor to get drug assistance.

    That's a lot of guilt.

    She just found out 2 years earlier she was POZ when she wrote this letter. There's an emotional gambit most go through after an HIV diagnosis. It's been 3 years since, I hope she has adjusted better.

    5 years ago she got a lot of information. Some of the medical info is not current. I don't know French, but I think I will try and follow up on her letter. She needs (or needed) support.

    She feels damaged, that's why you like the letter I bet. You like to inflict hostility.

    Dude its normal to feel guilt over something that happened 100% because of your own recklessness. Shes full of regrets, and its normal to be depressed about it. I feel empathy towards her and hope she finds a way to be at peace with her situation.
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    Aug 26, 2015 6:24 PM GMT
    David666k said
    timmm55 said
    David666k said
    timmm55 saidA lot of red flags:

    "It takes time because my virus has already mutated, it is resistant to a certain molecule that prevents me from taking certain antiretrovirals."

    She didn't get the right meds. If she had been infected and only given PrEP meds, it is not enough and can cause resistance.

    "Without going into details, the virus may develop resistance to antiretroviral drugs and mutate. Contrary to what I thought, somewhat naively perhaps, I can’t have sex with another HIV-positive person unprotected because I would take the risk of being infected by the virus again, which may well have mutations other than mine. This undoubtedly complicates my treatment options."

    Superinfections are at the time or near the time of initial infection. ART prevents HIV transmission AND reinfection ..to or from. I've posted studies on that.

    The yellow eyes are very unusual. I'd seek a second opinion.

    "It takes time because my virus has already mutated, it is resistant to a certain molecule that prevents me from taking certain antiretrovirals." The doctor fucked up big time. He or she didn't prescribe or take an essential medication.

    "Truvada is quite aggressive" This a translation from French. Something was lost.

    It was written in 2012. There's a lot of new and updated information out there.


    Stop making up excuses and accept living with HIV is not as simple as to have a cold.


    Certainly it isn't a cold. But it's her psychological health I'm worried about. She mentions her chronic depression, she wishes for pity, she feels like she's let down AIDS activists, she's apologetic for being young and poor to get drug assistance.

    That's a lot of guilt.

    She just found out 2 years earlier she was POZ when she wrote this letter. There's an emotional gambit most go through after an HIV diagnosis. It's been 3 years since, I hope she has adjusted better.

    5 years ago she got a lot of information. Some of the medical info is not current. I don't know French, but I think I will try and follow up on her letter. She needs (or needed) support.

    She feels damaged, that's why you like the letter I bet. You like to inflict hostility.

    Dude its normal to feel guilt over something that happened 100% because of your own recklessness. Shes full of regrets, and its normal to be depressed about it. I feel empathy towards her and hope she finds a way to be at peace with her situation.


    That's good. You show very little empathy typically. It isn't a 'nice read' it's full of pain.

    Feeling guilt and shame over it being "100% because of your own recklessness" is pointless now, it not constructive. She's doing what she needs to do (and few young people are) going on antivirals, eliminating a chain of infection and being an advocate.
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    Aug 26, 2015 6:54 PM GMT
    CODY4U saidSo very sad. Seems she was probably a bit of a tortured soul before her diagnosis. Maybe that's why she was so careless? I've known a few poz people personally that were a bit like her. If you talk to poz people in person, paticularly hetero ones, they typically don't idealize or downplay living with HIV the same way a lot of gay guys online try to.


    So Gay POZ guys idealize AND downplay HIV?

    How does one idealize....by definition regard or represent as perfect or better than in reality......HIV?

    After 30 years of being POZ and 10+ years of having an UVL, I don't downplay or worry about it. It's something I live with, just like any other manageable illness, like diabetes or others. It doesn't define me as a human being. But it has awakened me to HIV issues such as stigma, unjust criminal prosecution of people with HIV, HIV education, science and medical news.
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    Aug 26, 2015 8:37 PM GMT
    timmm55 said
    CODY4U saidSo very sad. Seems she was probably a bit of a tortured soul before her diagnosis. Maybe that's why she was so careless? I've known a few poz people personally that were a bit like her. If you talk to poz people in person, paticularly hetero ones, they typically don't idealize or downplay living with HIV the same way a lot of gay guys online try to.


    So Gay POZ guys idealize AND downplay HIV?

    How does one idealize....by definitionregard or represent as perfect or better than in reality......HIV?


    Dude look at yourself in the mirror to answer these questions. Are you really that blind or just playing dumb? You and the bullshit you spread in the forums are a great example of how some poz gay men downplay HIV constantly, and everyone can see that. Many have said that to your face lately, but you keep playing as if you had no idea what they're talking about, acting as if you were a victim and just in plain denial of your own actions.
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    Aug 26, 2015 9:38 PM GMT
    David666k said
    timmm55 said
    CODY4U saidSo very sad. Seems she was probably a bit of a tortured soul before her diagnosis. Maybe that's why she was so careless? I've known a few poz people personally that were a bit like her. If you talk to poz people in person, paticularly hetero ones, they typically don't idealize or downplay living with HIV the same way a lot of gay guys online try to.


    So Gay POZ guys idealize AND downplay HIV?

    How does one idealize....by definitionregard or represent as perfect or better than in reality......HIV?


    Dude look at yourself in the mirror to answer these questions. Are you really that blind or just playing dumb? You and the bullshit you spread in the forums are a great example of how some poz gay men downplay HIV constantly, and everyone can see that. Many have said that to your face lately, but you keep playing as if you had no idea what they're talking about, acting as if you were a victim and just in plain denial of your own actions.



    Answer the question.....how does one idealize....by definition: regard or represent as perfect or better than in reality......HIV?

    You are a hostile person. You want this poor girl to be steeped in guilt and torment. You say; "Dude its normal to feel guilt over something that happened 100% because of your own recklessness."

    Have you ever made a mistake in your life?

    Downplay HIV? Are you that unaware? I've been posting here for over 2 years about HIV news and medicine. ALL I've gotten from you is HATE.

    Before I posted HIV news did you know what PrEP was? HAART Therapy? TasP? It may be a shock to you but I'm trying to tell some of you how NOT to get HIV.

    “Sometimes people hold a core belief that is very strong. When they are presented with evidence that works against that belief, the new evidence cannot be accepted. It would create a feeling that is extremely uncomfortable, called cognitive dissonance. And because it is so important to protect the core belief, they will rationalize,
    ignore and even deny anything that doesn't fit in with the core belief.”

    Frantz Fanon

    You may want POZ people to be self loathing, guilt ridden, and all the other things that make you feel 'superior' and so smug.

    I don't agree.

    "We need to celebrate being HIV-positive and undetectable"

    Being honest, staying positive about being positive is hard work. I still have bad days when I just let those thoughts creep in and all I want to do is cry. It comes with the territory. Anything that can give me a boost surely must be a good thing. For me, being undetectable is one of those good things. It’s a great thing!

    Here I was given awful news but yet I slowly climbed my way back up and I began living my life again. It’s a different life from what I thought I would live but I am thankful it’s still a life. I went through the shame of being positive. I let it beat the crap out of me but I also put it in its rightful place and I’m pretty proud of that.

    After all the discrimination and stigma that we as a community have gone through, and are still going through, why do it to each other? More and more guys are living with HIV daily. Being undetectable is becoming a way of life so we need to adapt to this. It may not warrant a party or a greetings card but surely a “Congratulations” or even a high five will do the job just right.



    http://www.positivelite.com/component/zoo/item/we-need-to-celebrate-being-hiv-positive-and-undetectable


    The above is good mental health...it's dealing with HIV in a well adjusted manner.

    It is neither idealized OR downplayed. "It’s a great thing!" isn't about being POZ it's about being undetectable and not capable of transmitting HIV.
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    Aug 26, 2015 10:58 PM GMT
    Why is comparing HIV to diabetes so appealing to you guys? HIV isn't like diabetes or high blood pressure or thyroid disease or any other chronic condition. HIV is HIV. Exactly what I meant by downplaying. Now find an article from a diabetic who wishes they had HIV instead. I'll wait.

    timmm55 saidSo Gay POZ guys idealize AND downplay HIV?

    How does one idealize....by definition regard or represent as perfect or better than in reality......HIV?

    After 30 years of being POZ and 10+ years of having an UVL, I don't downplay or worry about it. It's something I live with, just like any other manageable illness, like diabetes or others. It doesn't define me as a human being. But it has awakened me to HIV issues such as stigma, unjust criminal prosecution of people with HIV, HIV education, science and medical news.


    Timmy, I cannot count the number of times some dishonest queen online has described being poz like it's the thing to be. I understand they're trying to keep the newly diagnosed from slitting their wrists, but they go a little extra with it sometimes. When I've had personal conversations with poz people who don't feel the need to downplay their situations, their accounts are a lot different and far less sugar-coated. There's a former meth addict by the name of Mark King that frequently idealizes living with the virus. He even refers to it as a "fabulous disease". Do you know him?
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    Aug 26, 2015 11:01 PM GMT
    @ Timmm55 and MMTM

    The more you write the more people clearly see where you stand.

    I admire many HIV+ men and women who stand up and try to fight this disease with a positive attitude, informing and warning the population.But neither of you -MMTM ant Timmm55- are one of them.

    I'm sorry you're so blind you can't see the difference between their attitude and yours, or why so many people here say you have a clear sick agenda. But I'm not going to spend time and effort trying to explain something you should realize on your own.

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    Aug 26, 2015 11:46 PM GMT
    MuchMoreThanMuscle said
    CODY4U saidWhy is comparing HIV to diabetes so appealing to you guys? HIV isn't like diabetes or high blood pressure or thyroid disease or any other chronic condition. HIV is HIV. Exactly what I meant by downplaying. Now find an article from a diabetic who wishes they had HIV instead. I'll wait.



    By all means, knock yourself out and find me one. My father had diabetes and I know of several people who have diabetes and they have had to have limbs amputated and some go blind. It's a very nasty disease. Some diabetics have to have needle injections poked into their eyes to try and halt vision damage and blindness.

    I personally have seen how diabetes can mess with a person. As long as diabetes has been around medication for HIV has made it a much less volatile experience.


    The challenge was for you to find it. You've pulled this dotor's claim (who BTW doesn't mention having HIV or diabetes) from your arsenal, now find someone with diabetes that wishes they had HIV instead. Let's see an entry from someone who actually has the condition claiming life would be better if they had HIV instead. It sounds insane, doesn't it?

    Lots of ugly things can happen medically, but that doesn't lessen the severity of the virus in anyway. You guys can both get very manipulative and dishonest with the information you present.
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    Aug 26, 2015 11:47 PM GMT
    @ MMTA

    Now I'm a troll because I decided to remove my pics after these being stolen and used to threaten me icon_rolleyes.gif

    Many people here know how I look, too bad you're not one of them. If you think I'm gonna put me or my family safety at risk just to please you think again - you're nobody, so if calling me a troll is your excuse not to give reasonable answers to what I say so be it. I couldn't care less, people read all you say anyways and take their own conclusions, and it shows by the constant messages you get from different users. As I said your agenda is very clear.
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    Aug 27, 2015 12:02 AM GMT
    CODY4U saidWhy is comparing HIV to diabetes so appealing to you guys? HIV isn't like diabetes or high blood pressure or thyroid disease or any other chronic condition. HIV is HIV. Exactly what I meant by downplaying. Now find an article from a diabetic who wishes they had HIV instead. I'll wait.

    timmm55 saidSo Gay POZ guys idealize AND downplay HIV?

    How does one idealize....by definition regard or represent as perfect or better than in reality......HIV?

    After 30 years of being POZ and 10+ years of having an UVL, I don't downplay or worry about it. It's something I live with, just like any other manageable illness, like diabetes or others. It doesn't define me as a human being. But it has awakened me to HIV issues such as stigma, unjust criminal prosecution of people with HIV, HIV education, science and medical news.


    Timmy, I cannot count the number of times some dishonest queen online has described being poz like it's the thing to be. I understand they're trying to keep the newly diagnosed from slitting their wrists, but they go a little extra with it sometimes. When I've had personal conversations with poz people who don't feel the need to downplay their situations, their accounts are a lot different and far less sugar-coated. There's a former meth addict by the name of Mark King that frequently idealizes living with the virus. He even refers to it as a "fabulous disease". Do you know him?


    I've read Mark Kings blog. It's "My Fabulous Disease".

    And he's not been a Meth user in many years.


    Mark S. King has been an active AIDS activist, writer and community organization leader since the early 1980s in Los Angeles. He has been an outspoken advocate for prevention education and for issues important to those living with HIV.

    Diagnosed in 1985, Mark has held positions with the Los Angeles Shanti Foundation, AID Atlanta and AIDS Survival Project, and is an award-winning writer. He continues his volunteer work as an AIDS educator and speaker for conferences and events.



    If living with HIV is nothing to be ashamed of, is it something to be proud of?

    It was a really interesting exercise to explore this question, and I hope you will head over to Visual AIDS to check out the exhibit online. Visual AIDS has thousands of images of artwork that represent the artistic expression of hundreds of artists living with HIV.

    http://blogs.poz.com/marksking/2015/06/the_visual_aids_web.html

    As for trading places with someone who is diabetic, I have two dead brothers who died of it. If I had asked Doug when his leg was being amputated if he would "trade" situations or while on his death bed......I'm pretty sure he would have said yes. Maybe you would rather have death than the stigma of a "Gay Disease."
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    Aug 27, 2015 12:17 AM GMT
    So many posts to reply to me. smh
    You keep writing and people will keep reading, everyone knows your true colors.
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    Aug 27, 2015 12:22 AM GMT



    Since you asked:


    Man forced to choose between kidney failure or risk taking HIV-infected donor organ

    He did have diabetes and elected to take a possible HIV POZ kidney.


    http://www.mirror.co.uk/news/uk-news/man-forced-choose-between-kidney-5322629
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    Aug 27, 2015 12:24 AM GMT
    David666k saidSo many posts to reply to me. smh
    You keep writing and people will keep reading, everyone knows your true colors.


    It isn't about YOU. it's about the people who read the threads. You are of no consequence....other than annoying and false claims.