My Somewhat Lethal Diagnosis

  • Posted by a hidden member.
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    May 03, 2009 5:10 AM GMT
    I've gotten the results of my biopsies and have to cope with what I've heard. Check it out in my latest vlog.


    http://www.youtube.com/watch?v=noHLtzoNQHA
  • Webster666

    Posts: 9217

    May 03, 2009 6:39 AM GMT
    You. Are. So. Adorable !
    I loved your YouTube video.
    You have the right attitude.

    My Ex has the same thing, and it never has kept him from traveling all over the world, working full time, and having an almost perfectly normal life. So, even though it's no fun being diagnosed with any type of disease, this shouldn't prevent you from reaching all your goals and having a wonderful, long and happy life.

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    May 03, 2009 6:51 AM GMT
    tryingtolive saidI've gotten the results of my biopsies and have to cope with what I've heard. Check it out in my latest vlog.


    http://www.youtube.com/watch?v=noHLtzoNQHA


    my personal trainer's got crohn's.


    he had a small chunk of his intestines removed last year, and that helped out a LOT.
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    May 03, 2009 12:03 PM GMT
    Webster666 saidYou. Are. So. Adorable !
    I loved your YouTube video.
    You have the right attitude.

    My Ex has the same thing, and it never has kept him from traveling all over the world, working full time, and having an almost perfectly normal life. So, even though it's no fun being diagnosed with any type of disease, this shouldn't prevent you from reaching all your goals and having a wonderful, long and happy life.

    Thank you for the comment. I know I'll have my bad days because of it, but I can't let it slow me down icon_wink.gif
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    May 03, 2009 12:07 PM GMT
    Funkapottomous said
    tryingtolive saidI've gotten the results of my biopsies and have to cope with what I've heard. Check it out in my latest vlog.


    http://www.youtube.com/watch?v=noHLtzoNQHA


    my personal trainer's got crohn's.


    he had a small chunk of his intestines removed last year, and that helped out a LOT.
    In what ways specifically if you don't mind my asking?
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    May 03, 2009 2:40 PM GMT
    tryingtolive said
    Funkapottomous said
    tryingtolive saidI've gotten the results of my biopsies and have to cope with what I've heard. Check it out in my latest vlog.


    http://www.youtube.com/watch?v=noHLtzoNQHA


    my personal trainer's got crohn's.


    he had a small chunk of his intestines removed last year, and that helped out a LOT.
    In what ways specifically if you don't mind my asking?
    uhm....

    his episodes are less frequent and he's able to actually eat food, and stuff?
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    May 03, 2009 2:52 PM GMT
    Hey man. I was diagnosed with Crohn's Disease back in 2006. It is hardly a lethal disease! I have been lucky that it hasn't impacted my life for the most part. Yeah, it sucks when you have a flare up, but my docs have been great and we have been able to handle them with medication.

    My doc has told me I am not restricted at all in what I can eat. I've been able to keep working out, putting on mass and enjoying my life.

    Don't let this diagnosis get you down!!! It's not the end of your life!
  • Klutch84

    Posts: 286

    May 03, 2009 3:04 PM GMT
    A guy I just stopped seeing has Crohn's. He's had it since he was a child and he never had any flare-ups or had to take any medication (from what I've witnessed). We dated from November to April and I hadn't heard of any symptoms he suffered.

    I do like your optimism throughout this period and you do have my unconditional support. Just be grateful that it's "just Crohn's", for your diagnosis could have been much worse. Stay lifted.
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    May 05, 2009 4:32 AM GMT
    Shifty84 saidA guy I just stopped seeing has Crohn's. He's had it since he was a child and he never had any flare-ups or had to take any medication (from what I've witnessed). We dated from November to April and I hadn't heard of any symptoms he suffered.

    I do like your optimism throughout this period and you do have my unconditional support. Just be grateful that it's "just Crohn's", for your diagnosis could have been much worse. Stay lifted.
    Thank you for your support. I'll try to stay as lifted I can.
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    May 05, 2009 5:00 AM GMT
    I have read that the soluble fiber in Plantains is supposed to be good for Crohn's. I think the brits are doing research on it at the University of Liverpool and have found that compounds in Plantain are very soothing to the digestive tract.

    Just a quick googling turn up these...

    Use of soluble plantain fibre and antibiotics in treatment of Crohn’s disease http://www.rlbuht.nhs.uk/library/document_downloads/brc_downloads/plantainfibre.pdf ... (....sticky E. coli ... icon_eek.gif ... yuck!)


    Provexis signs partner for plantain-based Crohn's disease product
    http://www.nutraingredients.com/Industry/Provexis-signs-partner-for-plantain-based-Crohn-s-disease-product
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    May 05, 2009 4:47 PM GMT
    Caslon10000 saidI have read that the soluble fiber in Plantains is supposed to be good for Crohn's. I think the brits are doing research on it at the University of Liverpool and have found that compounds in Plantain are very soothing to the digestive tract.

    Just a quick googling turn up these...

    Use of soluble plantain fibre and antibiotics in treatment of Crohn’s disease http://www.rlbuht.nhs.uk/library/document_downloads/brc_downloads/plantainfibre.pdf ... (....sticky E. coli ... icon_eek.gif ... yuck!)


    Provexis signs partner for plantain-based Crohn's disease product
    http://www.nutraingredients.com/Industry/Provexis-signs-partner-for-plantain-based-Crohn-s-disease-product


    Thanks for the info Caslon, I'll be sure to check it out when I get the chance.
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    May 05, 2009 4:58 PM GMT
    Props to you for facing this challenge head on and being clearly educated about your condition. You are your biggest health advocate and have to watch the decisions others will make about your condition. I admire your sense of humor about the situation.

    Now for the TMI part....

    Years ago they thought I had Crohn's, as several of my cousins and family members have digestive and intestinal issues...turned out I had 3 separate bacterial infections and a paramecium invasion! I grew up on a farm drinking well water and never thought better during years of swallowing various pond, lake and creek waters. The infectious disease specialists were shocked that my body was coping. Apparently I have a top notch immune system.

    Once they finally killed all the "bugs" I had the most normal guts of my adult life, although I still have stress and food related flare ups due to my colon likely never completely recovering. I don't tolerate anti-biotics AT ALL and am officially supposed to have some male version of IBS, but I think that's bollocks. I think my intestines have just been to hell and back 3 or 4 times- the aftermath can be a bitch, as I've lost a lot of nerve sensation and have some ongoing problems that will likely never resolve.
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    May 05, 2009 5:20 PM GMT
    tryingtolive saidI've gotten the results of my biopsies and have to cope with what I've heard. Check it out in my latest vlog.


    First, hugz & love to you, you're gonna be OK. Second, listen to us old guys, who deal with this and worse every day.

    I have epilepsy, heart disease, perforations in my stomach, advanced arthritis, more neurological disorders than I can list, wear hearing aids, barely walk with a cane, and a laundry list of other problems too long to bother you with.

    And ya know what? I don't give a damn. I'm alive, I'm here, and I'm having the greatest time of my life! I have a loving partner, a million friends it seems, so busy I sometimes wish I could have a break, and I couldn't be happier.

    You must have read about the 165-mile bicycle ride I did down to Key West for charity this past November, posted here on RJ. I was the most disabled, and the last over the finish line, but I did finish, every single fucking mile of it.

    Don't write yourself off. We are often defined by the challenges we face and overcome. You sound like a fighter. You will succeed and you will thrive, I know it.

    "We are shaped by our challenges, and by our challenges do we grow."
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    May 05, 2009 5:20 PM GMT
    Red_Vespa said
    tryingtolive saidI've gotten the results of my biopsies and have to cope with what I've heard. Check it out in my latest vlog.

    First, hugz & love to you, you're gonna be OK. Second, listen to us old guys, who deal with this and worse every day.

    I have epilepsy, heart disease, perforations in my stomach, advanced arthritis, more neurological disorders than I can list, wear hearing aids, barely walk with a cane, and a laundry list of other problems too long to bother you with.

    And ya know what? I don't give a damn. I'm alive, I'm here, and I'm having the greatest time of my life! I have a loving partner, a million friends it seems, so busy I sometimes wish I could have a break, and I couldn't be happier.

    You must have read about the 165-mile bicycle ride I did down to Key West for charity this past November, posted here on RJ. I was the most disabled, and the last over the finish line, but I did finish, every single fucking mile of it.

    Don't write yourself off. We are often defined by the challenges we face and overcome. You sound like a fighter. You will succeed and you will thrive, I know it.

    "We are shaped by our challenges, and by our challenges do we grow."