FORUMS > Gaining Weight Forum Rules

Foods to eat with no large intestine

  • dmlove02 Posts: 45
    QUOTE May 28, 2009 3:23 AM GMT
    Hey all - I am in a...different..situation than most in regards to my diet. Long story short in high school I got my large intestine removed because of precancerous tumors blah blah and my small intestines made in to a sort of pouch and reconnected. I had taken Prednisone, a steroid, for a long period of time at a high dosage and it had stunted my growth as well (I am 5'9").Not having a large intestine also means I go to the bathroom a LOT more times of day than a normal person would, leaving my prone to dehydration from lack of absorption of water and electrolytes.I have adapted very well since then (six or so years ago), and am currently up to 151 lbs. Ever since my surgery, I have been eating all organic foods, and try to get a good balance of fats, carbs, and proteins. I do, however, have serious diet restrictions. I cannot eat anything greasy (which is actually a good thing), no hard fiber at all including most fruits, vegetables, nuts, seeds, etc., limited dairy, and no red meat. I manage to get by with lots of soy, poultry, fish, peanut butter, and bread. I see myself as in the best shape of my life, and I only hope to get better. I work out 5x a week, both weight training and cardio, and try to stabilize my mind as well with education and meditation (I am applying to veterinary school this summer, actually, in like 5 days!) I was just hoping that some of you could give me some advice if you have any to share regarding other good foods I can try, or perhaps another training method. I mostly do free weights and body mass exercises (pullups, pushups, etc), doing muscle groups that work together in the same day (I know, I know, they ALL really work together, but I mean like chest tri) as well as antagonistic muscle groups. I am trying to gain a little more weight, but I don't really give a shit about being bulky, just healthy.

    Thanks to anyone in advance.

    -David Love (yes, I will be Dr. Love if and when I become a vet....fuckin' sweet. I should be a gynecologist with that title though, eh? icon_lol.gif )
  • Posted by a hidden member.Log in to view his profile
    QUOTE May 28, 2009 10:50 AM GMT
    I thought this was going to be a sausage thread!

    OP, congratulations on overcoming so many hurdles. The only advice I can give to you is to seek assistance from a registered medical professional and nutritionist. You do not want advice from any RJ member on nutrition as it relates to your medical condition.
  • Posted by a hidden member.Log in to view his profile
    QUOTE May 28, 2009 2:05 PM GMT
    Wow, I am really impressed by your determination and your positive attitude. I have no advice for you; obviously all the usual nutrition advice is useless if you have to avoid most fruit, vegetables, nuts, and seeds. Tapper is right, you should talk to a professional nutritionist.

    RJ is a great place to go for fitness advice, but I bet support groups for digestive problems might be a better source of information for your issue. I found this long list of support groups and foundations: http://digestive.niddk.nih.gov/resources/patient.htm

    dmlove02 said (yes, I will be Dr. Love if and when I become a vet....fuckin' sweet. I should be a gynecologist with that title though, eh?


    Not a urologist?
  • Posted by a hidden member.Log in to view his profile
    QUOTE May 28, 2009 2:20 PM GMT
    Hey DM,

    Very ironic, it's been 10 years but I have also had large intestines removed. I had the surgery you had but due to complications, I opted to have it removed and another more indept one done. Personally I do eat anything I want now in moderation, but I would like to find out what you do eat on a daily basis and what have you tried that has given you problems.

    It took me a long time but I have added back almost everything.

    How long has it been, and have you been to any of the jpouch support groups?

    This could get into a graphic/really personal topic, so if you want to message me directly do so!

    I maintain a healthy 155, 8.5% body fat and feel great, but it was a long time in the making! FYI your metabolism will slow LOL my small intestines now resemble a large icon_biggrin.gif

    Later
    D
  • Posted by a hidden member.Log in to view his profile
    QUOTE May 28, 2009 2:25 PM GMT
    Tapper saidI thought this was going to be a sausage thread!

    OP, congratulations on overcoming so many hurdles. The only advice I can give to you is to seek assistance from a registered medical professional and nutritionist. You do not want advice from any RJ member on nutrition as it relates to your medical condition.



    Ditto icon_exclaim.gif Check with your provider, ins. should cover visits to a nutritionist or dietitian.
  • Posted by a hidden member.Log in to view his profile
    QUOTE May 28, 2009 2:28 PM GMT
    Tapper saidI thought this was going to be a sausage thread!

    OP, congratulations on overcoming so many hurdles. The only advice I can give to you is to seek assistance from a registered medical professional and nutritionist. You do not want advice from any RJ member on nutrition as it relates to your medical condition.


    DM,

    while checking with a provider or dietician is a good idea, you did the right thing asking on here, there are TONS of people in your condition and the fact that you ask opens it up for you to get one on one advice. Most dieticians have never gone through what we have. Had I listened to them 100%, I'd still be drinking ensure daily to maintain health.

    I'm interested in hearing more of your story....

    talk soon

    Daniel
  • dmlove02 Posts: 45
    QUOTE May 28, 2009 5:49 PM GMT
    Thanks a lot, guys. The kudos is much appreciated. I have visited many a nutritionist and dietitian - as Daniel said, they seem to not fully grasp my condition. I, too, was prescribed ensure for life! Ha. icon_biggrin.gif

    Daniel - that is crazy! I am glad you responded, I sometimes feel alone in the world trying to deal with this. So you had the j-pouch done, and then another surgery because of complications...what sort of complications and what did the next surgery entail?

    I would love to get to the point of being able to eat anything I wish (in moderation). There are a few foods that just tear me up inside, and others that, because of a scar tissue stricture midway through my small intestines (where the pouch was connected to the rest of the small bowel) I cannot eat because it will get stuck requiring an intense chemical treatment or possible surgical extraction. Nuts, seeds, and fibrous fruits and vegetables all fall into this category. Red meat, especially steak, I have a hard time digesting. I can handle hamburger, but any solid piece of red meat tends to fuck me up in some way or another. I do, however, tend to 'cheat', and test myself a lot with these things. It HAS been getting better this past year, allowing me to eat one or two pieces of a previously taboo food. I figure if I can keep pushing my body to adapt to the foods I am 'not supposed' to eat, I can eventually get to the point where it is a non issue.

    It has been six years, I was a sophomore in high school when I had the surgery. Its nice to meet someone looking as good as yourself that has gone through the same thing and turned out wonderful.

    I visited a j-pouch group for a while, and got some very useful information from the site, but it was not frequented regularly and it was hard to get answers in any amount of time.

    My computer is messing up and would not let me message, otherwise you would have a long letter in your mailbox icon_lol.gif

    -David

  • Posted by a hidden member.Log in to view his profile
    QUOTE May 28, 2009 6:33 PM GMT
    Hey D

    no problem, i just sent you my email and we can go into more detail. But I too had problems with scar tissue etc. Before this current surgery i went from 145lbs to 105lbs b/c i mentally couldnt eat because of the pain. A few years back I was at 185 and 23% body fat b/c i got old and lazy, now that i am back in gym and eating correctly, I'm doing tons better.

    But we can talk more in email, but now you know you arent alone, quite a few people don't have their large intestines, personally i'm glad to have met another gay guy, it's been awkward to explain my situation to people but I let them know asap so it will filter out anyone that's not accepting, surprisingly only 2% of the guys are shallow and bolt!

    D
  • MuchMoreThanM... Posts: 21462
    QUOTE May 30, 2009 12:12 PM GMT
    Seriously? Why would a guy bolt on you for having your intestines removed. That's just screwed up.

    So to Daniel, I saw what looks like a band aid over your inguinal ligament area. Is that where they made the incision to perform the surgery? Hope my question isn't too personal to ask in a forum publicly. But it's fortunate that you don't seem to have any visible scars.
  • Posted by a hidden member.Log in to view his profile
    QUOTE May 30, 2009 5:26 PM GMT
    I wish I could help with the foods to eat thing, but I don't really know anything about it! Seriously congrats on your progress after the surgery though - you look like you're doing well.

    Yea that is pretty messed up - I've gone on a date with a guy with the surgery and there's nothing dealbreaker about it. I mean the guy himself is a little weird, but not because of the surgery...I don't think...

    Anyway, congrats again Dr. Love - you're looking great.
  • Posted by a hidden member.Log in to view his profile
    QUOTE Jun 02, 2009 4:58 AM GMT
    You guys should grow gardens, and save money while going organic, try juicing too. Good luck to u guys, and stay healthyicon_wink.gif
  • MikemikeMike Posts: 6387
    QUOTE Jun 02, 2009 5:42 AM GMT
    Very glad to hear you guys overcame so much! Seek the advice from each other's Dr.'s not RJ opinions!!!
  • Posted by a hidden member.Log in to view his profile
    QUOTE Jun 14, 2009 7:21 PM GMT
    Interesting post!. I had my Ileoanal reservoir surgery (J-pouch) 20 years ago this month. I was 15 at the time. I have been very fortunate in never experiencing any major post-surgical issues. Eventually you will come to realize the body can adopt to nearly anything. Feel free to hit me up by private message if you have any specific questions and/or concerns.

    Sean