Lyme Disease

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    Jun 10, 2010 2:17 PM GMT

    Has anybody else from RJ been diagnosed with Lyme Disease? If so, how long do you think you had it before you were treated and how long did it take before you started to feel better?

    Late last week I found out that I probably have it and began a month long course of doxycycline. The thing is that I feel worse now than I did in the five or six months leading up to being diagnosed. My knees and elbows don't ache constantly now - only when I'm fatigued. But I feel more run down, depressed and irritable than ever and I often feel nauseated too (possibly from the medicine). What I really want to do is sleep all the time. Sunday night I got a good eight hours of sleep, then got up on Monday, stayed awake for two hours and had a five hour nap. I slept well last night, but can barely fight the urge to go back to bed.

    In my case it looks like I was infected last fall and didn't recognize it until things got really uncomfortable a couple of weeks ago.

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    Jun 10, 2010 3:06 PM GMT
    I do not have Lyme Disease, but I found a good number of Lyme Disease support groups and other online resources by Googling "lyme disease support groups." This particular link lists groups & resources by US State:

    Doing US Army field training I would get lots of ticks on me, in geographical areas known for Lyme Disease. I gotta tell ya, doing recommended tick checks in the shower with other naked soldiers was most enjoyable. icon_biggrin.gif

    When I did find ticks on me, I'd remove most myself or with the help of others. But if a troop clinic or hospital was readily available I'd have them remove at least one there, especially any deeply embedded ticks, so there'd be a notation in my medical records in case Lyme disease later developed. Some larger medical facilities also ran tests on the removed ticks.

    If you live in a Lyme Disease region, I would recommend promptly seeing a medical facility for removal of any embedded ticks. Surface ticks I would immediately remove myself, before they become embedded. I don't know if there are vaccines or other prophylactic measures against Lyme, other than using insect repellent and wearing full-coverage clothes in the woods, including "bloused" boots as we did the in the Army, and long-sleeve shirts.

    The goal is to reduce skin exposure, and to limit entry points in your clothing to ticks. During tick season I usually buzzed my head, which was also cooler & cleaner in field conditions, and of course we always wore a uniform cap outdoors if not a helmet.
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    Jun 10, 2010 3:09 PM GMT
    My mom had lyme disease. She had similar issues, but the medication really helped her. Luckily the doctors caught it relatively early; she had the rash and achey joints that are common symptoms. With more advanced cases, it just takes more time to feel better, but since its been months and not years, you'll likely make a good recovery in due course.

    Good luck icon_sad.gif I'm sorry you feel so bad!

    Also, you might want to get a referral to an Infectious Disease doctor... who specializes in this area of treatment. I think Doxycycline is a standard course of treatment, but perhaps there are other options or other medicines that speed recovery.
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    Jun 10, 2010 10:32 PM GMT

    Thanks, Wilton and Zbmw.

    I'm lucky to have a good infectious disease doctor with plenty of experience with Lyme Disease. I called her office this afternoon and spoke to her assistant. I guess I was reassured to be advised that sometimes it's best to just give into the fatigue and lay low for a couple of days. If I don't notice some improvement in the next week, then we may try a more intense regime of antibiotics.

    In the meantime, guys, avoid ticks! I know I will.
  • janu88

    Posts: 348

    Mar 14, 2011 8:22 PM GMT
    there´s a good movie i watched about Lyme "Under our skin"

    tho as much as i´ve read Ozone, sea salt/ c vitamin therapy, hydrogen peroxide,

    there´s a chance that AB-s wont kill the bacteria and it will become resistant..
    and you might have co-infections like babieosis,bartonella, ehcrilliosis,

    but yeah, hope you get well.
    but some people dont... because they go undiagnosed for years.

    i´m waiting for my blood test for it, which arent accurate..
    because it has alot of false negatives and some false positives.

    but good luck with the recovery. icon_smile.gif
  • Pats

    Posts: 2

    Jul 04, 2012 11:24 AM GMT
    Lyme disease is a serious neuro-immune disease. I am so sorry that you have to deal with this. I understand your struggles. There are groups on facebook who understand too. Just search for "invisible"diseases" and you may be surprised how many gay people have one of these terrible invisible illnesses. Hang in there, buddy! We are routing for you!