Crohn's Disease/Ulcerative Colitis and Supplements

  • Posted by a hidden member.
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    Mar 02, 2008 5:51 PM GMT
    Over a year ago I was diagnosed with Crohn's disease.

    I have been very fortunate and had only a couple very minor flare ups. Nothing that has really impacted my life so far. I was just wondering if anyone knows if I should avoid any supplements like NO or creatine or any dietary tips. Thanks for any help!
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    Mar 02, 2008 7:32 PM GMT
    I would get tested for allergies. Specifically wheat, corn, or soy allergies. Those foods are ubiquitous and sometimes what is diagnosed as Chrohn's disease or Colitis is just the manifestation of these allergies.
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    Mar 02, 2008 8:31 PM GMT
    Thanks. I have had several blood tests and other things done and unfortunately it has always come back as Crohn's
  • GeorgeNJ

    Posts: 216

    Mar 02, 2008 10:49 PM GMT
    Rhodie, there is a doctor I listen to on the radio, Ron Hoffman, who is quite reputable. His approach is to use natural alternatives (if possible) before turning to the more traditional pharmaceuticals.

    First, MunchingZombie's advice above is quite excellent -- but if you already tried it and still come up short, check out Hoffman's site. Here are his main link (you can do a search there for 'crohn's'), and a link to his advice for dealing with Crohn's. NB I don't think he tells you what NOT to take (except in terms of products with microparticles), but he does offer a list of supplements at the end to help with the whole thing.

    One thing I heard is great, which Hoffman doesn't mention, is coconut macaroons -- seriously. Is this already a part of your muscle building diet? ha ha

    The best of luck to you, buddy.
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    Mar 02, 2008 11:00 PM GMT
    I read the wikipedia about the disease and followed out to some of the other links....thanks for the education.
    I am sorry you have this condition and hope you are not in pain. How do you know when it is your Crohn's acting up and not say "the flu" or something else? Is there a particular thing or place that does something, or hurts or whatever, that tells you? The the prednisone, etc, are some powerful drugs! Do they bother you or have interactions with your supplements or your routines?
    Is there anything we can do to help you?
    You have my well wishes and positive thoughts.

    I was looking in some of my mom's (SHE IS an MD, JD, PhD!) medical reference books and came across a 1 year study done in Italy. Apparently, it found that people with Crohn's who took "sustained-release fish oil supplements" were less likely to suffer relapses, than those who did not. Of the subjects who took fish oil, over half remained symptom free, comparred with only a quarter of those who took a placebo.....Maybe you should ask your doctor about this?

    Good Luck!

    PS: We should all be so lucky as to look as "sick" as you do! Take Care.
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    Mar 02, 2008 11:20 PM GMT
    Thanks guys. Between a couple fun colonoscopies and other blood tests and reactions to medications it has been determined to be Crohn's. I will definitely look into Dr Hoffman's site. It sounds very interesting. In just some of my reading about Crohn's and nutrition, I have learned a lot of good things to use in general such as the benefit of getting probiotics, basically good bacteria that helps your digestive system and things like that. I am currently taking fish oil supplements and flax seed as well. Maybe thats helped keep my flare ups minor so far. I have been lucky in my meds as well. Nothing too scary. I have managed to totally avoid any cortical steroids and my doctor supports that.
    And Sporty G, as far how do I know its not the flu? me. I wouldn't tell you on here what my symptoms are, but they definitely aren't flu related!! I have also been VERY fortunate as to not have had any pain yet. I have talked to some people who say its like getting knifed in the gut.

    Probably the biggest annoyance so far has been that I have had to change certain bedroom Being in the military, I can't exactly go tell my doc I need this taken care of so I can bottom!! icon_razz.gif

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    Mar 02, 2008 11:30 PM GMT
    I have been diagnosed with Crohn's Disease for seven years. One thing that I had issues with during a major flare up was dealing with a "temporary" lactose intolerance - although I was able to eat yogurt and cream cheese during this time. I have been receiving Remicade infusions for almost five years (every five weeks) and am on Asacol, codeine and oral methotrexate. After an extended period of time (three years, give or take) I was able to consume dairy once again - strange, but true!

    I have worked with several different dietitians as I also was diagnosed with HIV fairly close to my Crohn's diagnosis. Each one of them had differing opinions regarding what I could/couldn't eat: I had one dietitian tell me I needed to DOUBLE (!) my protein intake in order to keep my weight up - I had lost almost 75 pounds during the flare up. Eliminating fresh vegetables was also recommended as well.

    Regarding supplements, several physicians and dietitians had me take acidolpholis (an active culture that is in yogurt) every morning, 30 minutes prior to eating anything. There are research studies stating that you need "good" bacteria in your gut to combat the "bad" bacteria and nutrients you are missing. I totally stopped taking whey protein and switched to soy protein as an additional form of caloric and protein intake.

    Things are ok now... but I am very cautious about eating large amounts of raw/fresh veggies (which I can consume, but don't cause as much havoc as they did earlier) and watch fiber intake. Some told me to increase the fiber in my diet, but that just made things worse.

    Good luck to you and know that you aren't alone when dealing with Crohn's.
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    Mar 02, 2008 11:52 PM GMT
    wow cjgdesignr, you got hit with a double wammy. Sorry to hear that bud.
    I drink kefir every day and kambucha sometimes. They are both chalk full of the good bacteria.
    My doctor has talked about putting me on Remicade but that would make me "not fit for full duty" and I would be medically retired from the Navy. I have mixed feelings about that.
    I ate pretty healthy before my first flare up, but I had just gotten back from a 6 month deployment on an aircraft carrier where we pulled into ports in Asia. No idea how that might have impacted things.
    I do eat a lot of fresh veggies, maybe I should cut back on that.
  • TexanMan82

    Posts: 893

    Mar 17, 2008 9:34 PM GMT
    Sorry to hear about your Crohn's Disease. A really good friend of mine suffered from ulcerative colitis for ~8 years. She had her colon removed March of 2007.

    The year leading up to her surgery was one of the hardest on her. She finally decided to have the colon removed.

    She is now healthy and is living her regular life again. Good luck to you.
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    Feb 02, 2010 6:17 PM GMT
    Hi. I'm new to this. I was just doing some research on UC (Ulcerative Colitis) and I came across this link, and figured I might add a few bits in - maybe give others some hope.
    I was diagnosed with UC at the age of 5, I'm 30 now. It was a long battle - some times years would go by without any symptoms - since I reached grade 12 I had a flare up almost every year - weird enough normally around winter. It is very painful to have a flare up - staying in bed not being able to go out - 10-15 bowel movements perday...horrible pains in the stomach.
    Here are some things that helped me along the way.

    I agree with everyone's comments here on this forum. When you have a flare up, please remove any raw veggies, raw fruits from your diet. This will make things worse. Remove diary. Now yogurt is great especially homemade yogurt because that contains no preservatives or sugars. Take that 3 times a day. If you can eat fish 2-3 times a week that would be great too or a time released fish oil pill if you can find one. Limit your chicken intake because that causes acid in your body (1-2 times a week is ok). Steam all veggies and fruits. Do not drink any alcohol, or caffeinated drinks. You want to drink juice? - then get a juicer and juice your veggies (one carrot, 4oz of cabbage - hard to digest but sooo good for you, spinach, and one pomegranate).
    Keep up the exercise because apparently the intestines have a mind of their own like our brain, and during exercise the intestines also produce insulin and insulin helps in digesting, and heals the gut.
    Kefir is great too I heard but I need to learn how to make it. Make sure you have a support group. My wife is wonderful to me when I have a flare up, very supportive. Remember to smile, and have a sense of humour about this whole fiasco. The diet might seem hard at first, but it's only to get you over this minor hill then it's back to your normal self.
    Keeping this in mind, please remove as much fatty foods from your diet like french fries burgers etc. NO NUTS EVER AGAIN - WAAY TOO BAD FOR CD AND UC PEOPLE - PLEASE. If you must drink milk, don't drink cow milk - our bodies haven't evolved yet to digest it yet - instead drink So Good Soy Milk - or better yet unpasturized Goat Milk. I know you guys work out here hence the site name, so the fat content in Goat Milk might make you turn your head, but for UC and CD it is great because of all the pro/prebiotics and oligosaccharides.
    Find a vitamin that contains Calcium with Vitamin D. Vitamin D must be 1000 IU per day. That's why North Americans (northern countries like Canadians) and any country that gets less sun have a high chance in UC and CD because Vitamin D (UVB rays) help the body feel better and less diarrhea. Southerners have a lower rate of UC and CD because their diet also contains Cabbage (healing vegetable). Careful, Cabbage causes a lot of gas and is hard to digest, so build your self up, don't gobble it up thinking your superman you'll pay for it in the end.
    It is good to have your Whey Protien, but be careful, depending on the stage of your UC or CD it could make things better or worse.
    Follow your Dr.'s advice and medicine, but add this on and it will help. I learned all this the hard way - trial and error but I figure that maybe now I can help some one else with my knowledge about this condition. Remember, you're not alone, what like 1 in 8 people have this condition so don't worry. Breath, relax, and don't let these things bring you down (advise I should tell myself).
    I hope this helps, I know I was going all over the place, but I needed to write down everything that was coming to me.
    Good luck.