• Posted by a hidden member.
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    Dec 10, 2007 12:39 AM GMT
    New here to RJ.

    Wondering if anybody else has hypothyroidism? I was diagnosed about 3 years ago. The doctor told me I should lose about 20 pounds once the medication kicked in. I started the synthroid. It took awhile to get the dosage right.

    Never noticed any changes as was expected. Never lost weight, didn't have a boost of energy,etc. My TSH levels are very low. The doctor they are too low but I have convinced him to keep them at this level afraid I may gain more weight if the levels go up.

    I would like to hear from others that have this and what their experience has been.
  • RSportsguy

    Posts: 1927

    Dec 10, 2007 1:11 AM GMT
    I am in the same situation! In fact, I am going to make an appointment sometime this week to go in and get blood work done. I don't think my dosage is high enough. I still feel fatigued and I did not lose any weight. (some of that is my fault though!!). I hope everything works out for you Gayfotoman!
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    Dec 10, 2007 1:32 AM GMT
    T3 / T4 is touchy stuff. To much and it's real hard on ya'. To little and you're a sluthe.
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    Dec 10, 2007 1:39 AM GMT
    One thing I have found is to ask your doctor for some water pills. I went to a nutrionist this summer and she happened to also have hypo... She is the one that mentioned the water pills. People with it tend to retain quite a bit of fluids. It is one thing that I have noticed a change taking. I wake up in the morning and my face and fingers appear swollen.

    Just be prepare to pee a lot! For me, it is almost amazing how much water I can retain. I also drink a lot of water during the day to flush the system.
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    Dec 10, 2007 4:17 AM GMT
    I was diagnosed a few years ago during a routine checkup. Once I got on the right dosage, I began to lose weight MUCH easier than before (but still have to go to the gym and all that "healthy" stuff, haha). Also helped with energy levels, cramps, etc....
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    Dec 10, 2007 4:36 AM GMT
    I was diagnosed with hypothyroidism in April of 2005 and It's been somewhat of a roller coaster since then. I was hypothyroid again and then became hyperthyroid for a short period. My doctor adjusted my dosage accordingly and for the last ten months or so have been consistently feeling good.
    When I was hypo I didn't really have a problem with weight gain probably because I was working out. I may have gained a small amount because I was sometimes too fatigued to go to the gym or would have to take days off to recover because I didn't have the energy.

    As you probably already know, the thyroid regulates your metabolism and how your body uses energy but even when the thyroid is in the normal range, if you take in too many calories you are going to gain weight or at least have a hard time losing weight.

    I'm not sure what your TSH levels are but I know when my TSH gets to around 2.0 I start experiencing hypothyroid symptoms. Also, is your doctor checking your free T4 level and is it in the normal range?

    One thing I want to caution is never just except if your doctor says your TSH is normal. You definitely need to take control and not just rely on what the doctor may tell you. Always ask what the lab reading is. Many doctors including The American Society of Clinical Endocrinologists have recommended that the normal range be lowered but many labs still use the higher range. So your TSH may be normal according to the range they use when in fact you may still be Hypothyroid.

    Hope that helps a little. If you have any questions just let me know.

  • Posted by a hidden member.
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    Dec 10, 2007 4:57 AM GMT
    Hi gayfotoman hi everybody!!

    My advice is to visit again to your doctor. Once the Synthroid is started TSH levels should be measured again in order to be sure that TSH level returns to normal value.

    Normal values are 0.4 to 4.0 mIU/L, but in people with thyroid disorder TSH should be between 0.5 and 2.0 mIU/L

    Very low TSH levels just indicate too much medication which is not good for your health. Water pills or Diuretics should be avoided in your case because some of theme like HCTZ are going to make you loss potassium in your urine so that may increase the fatigue sensation, also low potassium levels are not good for your heart.

    My advice again is see your doctor!!!

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    Dec 10, 2007 3:05 PM GMT
    Thanks for the replies. I do get copies of my tests. My TSH is usually about .1 The doctor is the one that gave me the water pills because I have such a huge problem with water retension. Another side effect of the Hypthy. is that I don't sweat much and my skin is very dry.

    I get bloodwork done every 3 months.
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    Dec 10, 2007 3:18 PM GMT
    Your TSH is borderline suppressed, fotoman, and that could lead to osteoporosis and heart problems. Having your TSH normalized will allow your body to lose weight and function normally, but you will still have to adjust calories taken in vs. burned in order to lose. (Do the math: the ONLY way to lose weight is to consume less than you burn.)

    One thing you might want to consider however, is to change from a synthetic levothyroxine (the active ingredient in Synthroid) to a mixture of ground-up pig thyroid tissue called Armour Thyroid. It's kindof old school, but can really help those patients whose numbers look good on paper but still feel like crap anyway.

    Talk to your doctor about it, or consider seeing an endocrinologist.
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    Dec 13, 2007 2:35 AM GMT
    I tried the Armour route for about a year. It wasn't easy convincing the doc to let me try it. I had researched it and knew all the reasons why doctors felt they had to use synthroid. Sadly, it didn't make any difference either. I finally went back to synthroid for insurance reasons.

    The label says to take synthroid in the morning. My nutrionist suggested taking it a bedtime. Different really make a difference. It's like a big puzzle trying to find the right pieces and making them fit. Of course the hypogonadism just as some more twists and turns.

    I've recently been switched from prozac to lexapro. (6 months ago) I've been by several people that they put on weight with lexapro. Sometimes, I just want to give up. I wish I could find somebody that could sit down and anaylze all my meds and figure out how they might be impacting each other and my body. I asked my doctor about such a person on last visit and he suggested my pharmaacist. Not exactly what I was looking for.
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    Dec 15, 2007 5:31 AM GMT
    I have to agree with one of the earlier posters, your TSH at .1 is on the low side. You may be experiencing hyperthyroid symptoms which have very similar side effect as hypothyroidism. Do you have any anxiety or nervousness?

    I'm also curious why you are on Prozac/Lexapro? Were you diagnosed with depression prior to your hypothyroidism? One of the symptoms of hypothyroidism is depression and unless you treat the underlying condition(thyroid), the medication is not going to help treat the depression.

    Another thing you might want to look into is having your T3 levels checked. You might have a problem converting T4 to T3 which your body uses at the cellular level. Your thyroid produces only about 20% T3 and the rest is converted from T4 by the body. Synthetic thyroid hormone (Levothyroxine) only contains T4 so your body has to convert all of it's needed T3 from T4.
  • Posted by a hidden member.
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    Dec 15, 2007 7:39 AM GMT
    Sounds like most of you were recently diagnosed, I've been Hypo since birth, and as long as I keep up on taking my Synth, I'm good. I don't do well on generic meds, or naturopathic(dried pig thyroid glands), I tested them years ago, and my TSH levels and symptoms didn't return to normal until I got back on name brand Synthroid. Some people do fine on generics, some don't, I just know what works for me.

    I can really tell when it goes off(when I am bad about taking meds, or don't have money for it), skin dries out, I go even whiter than usual, body temp drops, blood pressure drops below my normally low pressure, constipation, slurred speech, sluggishness, always tired, diminished cognitive skills, weight gain, etc...

    I get blood work every 6 months usually, and as long as my TSH is in normal range, I feel great. I did learn years ago that soy can interfere with medication for hypo, so be careful about the amount of soy you consume. I checked on it after I was having symptoms similar to being off synthroid after I started drinking soy milk instead of dairy, and soy ice cream, etc. Once i switched back to dairy, the symptoms started going away again, so for me, the soy was causing probs.
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    Dec 25, 2007 8:49 PM GMT
    I have been on prozac for 20 some years.(or a variation). I recently switched to lexapro. I'm wondering if this is what has caused some of my recent weight gain. I have read several articles on the web that lexapro in particular will cause some significant weight gain.

    I go in for another test in January. I will post results from that test and see where I am.
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    Jan 28, 2008 8:09 PM GMT
    I had said I would post results when I got my next bloodwork done. Here they are:
    Free T3: 3.2
    Free T4: 0.88
    TSH: 3.25

    Total: 592
    Free: 17.9%
    % Free: .30


  • Posted by a hidden member.
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    Jan 28, 2008 8:35 PM GMT
    Get your test adjusted up to 1200 to 1400 (depends on the scale but it would be somewhere in there). It'll improve your mood, body composition, protect your heart, prevent diseases of aging, keep you from getting sick, and help you think faster.

    Have them test your estrogen, and if it's high, knock it down.

    If I remember right, the scale goes to 1600. I'm always on, and have been on HRT for years. An ounce of prevention is a pound of cure in this stuff. There's no reason to grow old prematurely.

    I'd sure try to avoid statins, because they are just horrible for you.

    If your insurance will pay, I'd sure look into GH supplementation as well. In about 6 months of use, GH can set the clock back a good 10 years, or more.
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    Feb 07, 2008 3:31 PM GMT
    Even though it is still in the normal range your TSH is on the high side for someone who is Hypothyroid, it should be around 1.0. I can't comment on your T3 levels because Im not sure what the range is and it depends on what range the lab uses but your T4 levels are low.
    I would talk with your doctor about getting your TSH around 1.0 which also will bring your free T4 up, it should make you feel much better.
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    Mar 20, 2008 8:34 PM GMT
    I was diagnosed with hypothyroidism several months ago.

    I have been taking a (smelly) pill made from animal thyroid extract. Now I feel much better, vibrant, and I believe my thinking processes have become more positive.
    I don't need as much sleep, and I'm usually not groggy in the morning. What a contrast!

    My major complaint to my doctor for several years had been low energy level and lethargy, and both of these symptoms seem to have vanished.

    Now I get to work off the accumulated fat, and get in shape.

    Now I find that the more active I am, the more restless I become when inactive, and I think that is a good thing.

  • zenny

    Posts: 229

    Mar 17, 2011 1:18 AM GMT
    I was diagnosed with hyperthyroidism..it sucks.
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    Mar 17, 2011 1:32 AM GMT
    One of my good friends has hypothyroidism. It made for a very difficult pregnancy... icon_razz.gif
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    Mar 17, 2011 4:56 PM GMT
    My mother was hyperthyroid (overactive) in the mid-1950s, when treatment options were limited. They tried some then-experimental radiation therapy to destroy part of her thyroid. It didn't work, so in late 1956 they had to resort to surgery to remove her thyroid.

    The consequence was that she now became hypothyroid (underactive), as the OP says he is, and she suddenly put on lots of weight. There were medicines to compensate for that, but regulating her was very difficult and took a few years. She would start acting hyperthyroid again (nervous, jittery, hand tremors), and then swing back to becoming sluggish & gaining weight. It was a lot like my initial regulation to my own epilepsy meds, a sometimes lengthy process.

    I think the OP needs to work more closely with his doctors. It does sound like he may be under-medicated, but only laboratory tests and diagnosis can determine that.
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    Mar 17, 2011 5:15 PM GMT
    thyroid problems are linked to Iodine deficiency.... not that modern 'medicine' would want you to respolve your problems with seaweed.